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rustysgurl

(1,096 posts) Tue Nov 4, 2025, 03:42 PM Nov 4

236

Rusty Update ...

Doctor visit yesterday - Multiple Myeloma (Kappa). 90% involvement in his bone marrow. Start chemo and immunotherapy next Tuesday for 16 weeks. Adding another drug midway to help with bone damage. After the 16 weeks transfer to KU Medical Center care for autologous stem cell transplant regimen (unless his cardiac MRI shows amyloidosis - which is common in MM patients). Once he goes into remission he will be on maintenance meds.

Rusty is hopeful and excited to start treatment. Holiday gatherings are cancelled. He will mask up everywhere as he will be immunocompromised. Dr is worried about respiratory infections during treatment.

But, in all of this we have food to eat, a roof over our head, and the love and support of so many. We are lucky.

38 replies

= new reply since forum marked as read

Highlight:

Rusty Update ... (Original Post) rustysgurl Nov 4 OP

Sending hugs and positive vibes as Rusty begins the treatment livetohike Nov 4 #1

Sending positive vibes your way MustLoveBeagles Nov 4 #2

Hugs to you both! pandr32 Nov 4 #3

My brother had an autologous bone marrow transplant Freddie Nov 4 #4

Sending healing vibes and best wishes for the very best outcome. HeartsCanHope Nov 4 #5

eggscllent news. AllaN01Bear Nov 4 #6

Healing Vibes sent your way.... spanone Nov 4 #7

can you do a virtual holiday thing? Skittles Nov 4 #8

Hey, medical issues have come a long way in the treatment department. calimary Nov 4 #9

Sending you vibes of support and health, all the way around. slightlv Nov 4 #10

Wishing you both a smooth process IbogaProject Nov 4 #11

Sending all the healing prayers I can gather to Rusty and to you. LoisB Nov 4 #12

M-I-L was diagnosed with it over 50 years ago. Even with the treatment they had back then, she lived 14 yrs appleannie1 Nov 4 #13

You are in my prayers Rustysgurl JMCKUSICK Nov 4 #14

All the best to you both. A tough road ahead for sure, Fla Dem Nov 4 #15

Sending positive thoughts to you BOTH!! bluestarone Nov 4 #16

Sending healing vibes to Rusty FakeNoose Nov 4 #17

I didn't realize you were in Kansas ... Blue_playwright Nov 4 #18

We are in Olathe ... rustysgurl Nov 5 #25

Healing energy and comfort to Rusty 💚💖 Clouds Passing Nov 4 #19

Be sure to take care of yourself BaronChocula Nov 4 #20

Wishing your family the best, rustysgurl!! 70sEraVet Nov 4 #21

Healing vibes on the way! Nevilledog Nov 4 #22

Had a friend in good shape several years after the stem cell procedure. surfered Nov 4 #23

Sending healing hugs to Rusty gademocrat7 Nov 4 #24

Sending more love. SleeplessinSoCal Nov 5 #26

Cyber hugs & good vibes to both of you SheltieLover Nov 5 #27

I send my good luck with your treatment Snoopy 7 Nov 5 #28

My husband is 11# yrs on that journey Nanjeanne Nov 5 #29

As a cancer survivor myself... GiqueCee Nov 5 #30

I have a friend who's done quite well with this course of treatment NNadir Nov 5 #31

Best of luck. Prayers. Joinfortmill Nov 5 #32

Hoping for the very best outcome for you and Rusty! 💗💗💗 58Sunliner Nov 5 #33

Sending him & your whole family my best wishes! CaptainTruth Nov 5 #34

Sending prayers for a complete recovery for Rusty. brer cat Nov 5 #35

Sending you and your Rusty all the very best. hamsterjill Nov 5 #36

Hoping for a fast recovery and FemDemERA Nov 5 #37

What really impresses me, as we wish for a successful treatment and recovery is... NNadir Nov 5 #38

livetohike

(24,062 posts)

1. Sending hugs and positive vibes as Rusty begins the treatment

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 03:46 PM

Nov 4

plan.

MustLoveBeagles

(15,065 posts)

2. Sending positive vibes your way

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 03:57 PM

Nov 4

Good luck

pandr32

(13,875 posts)

3. Hugs to you both!

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 04:03 PM

Nov 4

DU love to you and Rusty.

Freddie

(10,073 posts)

4. My brother had an autologous bone marrow transplant

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 04:33 PM

Nov 4

For non-Hodgkin’s lymphoma. That was 6 years ago, he’s still very much with us. It’s an arduous procedure but worth it. Best of luck!

HeartsCanHope

(1,544 posts)

5. Sending healing vibes and best wishes for the very best outcome.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 04:53 PM

Nov 4

You both will be in my thoughts.

AllaN01Bear

(28,795 posts)

6. eggscllent news.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:04 PM

Nov 4

spanone

(141,168 posts)

7. Healing Vibes sent your way....

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:04 PM

Nov 4

❤️ ❤️

Skittles

(170,055 posts)

8. can you do a virtual holiday thing?

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:09 PM

Nov 4

calimary

(89,231 posts)

9. Hey, medical issues have come a long way in the treatment department.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:25 PM

Nov 4

Even if the cures aren’t quite there yet, life extension has improved, on average, by a noticeable degree. That’s always welcome news.

slightlv

(7,520 posts)

10. Sending you vibes of support and health, all the way around.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:41 PM

Nov 4

KU Med is a great place. They helped my Mom several times. I just kept getting lost on campus trying to find her! (LOL)

Blessings to you and Rusty!

IbogaProject

(5,682 posts)

11. Wishing you both a smooth process

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:42 PM

Nov 4

And wishing for a great recovery for Rusty.

LoisB

(12,498 posts)

12. Sending all the healing prayers I can gather to Rusty and to you.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:50 PM

Nov 4

appleannie1

(5,428 posts)

13. M-I-L was diagnosed with it over 50 years ago. Even with the treatment they had back then, she lived 14 yrs

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:51 PM

Nov 4

Keep up the positive vibes, do the treatment and he can outlive us all. Will keep him in my thoughts.

JMCKUSICK

(5,338 posts)

14. You are in my prayers Rustysgurl

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:53 PM

Nov 4

Fla Dem

(27,470 posts)

15. All the best to you both. A tough road ahead for sure,

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:55 PM

Nov 4

but it sounds like you've have a very positive mindset. Please keep us posted.

bluestarone

(21,543 posts)

16. Sending positive thoughts to you BOTH!!

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 05:58 PM

Nov 4

FakeNoose

(40,554 posts)

17. Sending healing vibes to Rusty

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:06 PM

Nov 4

Here's hoping for a quick and positive recovery. It's going to be hard on you both, but try to stay positive.

Blue_playwright

(1,613 posts)

18. I didn't realize you were in Kansas ...

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:10 PM

Nov 4

... I'm in Wichita. Let me know if there is anything I can do... bring a meal... anything?

rustysgurl

(1,096 posts)

25. We are in Olathe ...

Reply to Blue_playwright (Reply #18)

Wed Nov 5, 2025, 01:08 AM

Nov 5

but I am a Wichita girl, born and bred. Three hours might be a little far to bring a meal, but I thank you for the offer.

Clouds Passing

(7,334 posts)

19. Healing energy and comfort to Rusty 💚💖

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:12 PM

Nov 4

He’ll be in good hands at KU. I know I was!

BaronChocula

(4,141 posts)

20. Be sure to take care of yourself

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:12 PM

Nov 4

as you take care of Rusty. Sending the good vibes!

70sEraVet

(5,327 posts)

21. Wishing your family the best, rustysgurl!!

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:20 PM

Nov 4

Nevilledog

(54,730 posts)

22. Healing vibes on the way!

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:21 PM

Nov 4

surfered

(12,186 posts)

23. Had a friend in good shape several years after the stem cell procedure.

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 06:21 PM

Nov 4

Good luck

gademocrat7

(11,835 posts)

24. Sending healing hugs to Rusty

Reply to rustysgurl (Original post)

Tue Nov 4, 2025, 10:04 PM

Nov 4

We are with you all on this journey. Take care.💙

SleeplessinSoCal

(10,378 posts)

26. Sending more love.

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 01:37 AM

Nov 5

❤️❤️❤️

SheltieLover

(77,970 posts)

27. Cyber hugs & good vibes to both of you

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 02:16 AM

Nov 5

Snoopy 7

(721 posts)

28. I send my good luck with your treatment

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 06:21 AM

Nov 5

But, I also sit here and I'm crying about children going hungry. God bless the poor...

Nanjeanne

(6,523 posts)

29. My husband is 11# yrs on that journey

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 07:36 AM

Nov 5

and we leave for Rome vacation very soon. There is much hope and great improvements with treatment now. Stay positive and best of luck. DM me for any advice or support

GiqueCee

(3,558 posts)

30. As a cancer survivor myself...

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 07:50 AM

Nov 5

... I wish Rusty luck. Sounds like he's got an abundance of love going for him.

NNadir

(37,467 posts)

31. I have a friend who's done quite well with this course of treatment

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 08:34 AM

Nov 5

All of us are pulling for Rusty's similar success.

My friend is still alive, thriving.

Joinfortmill

(20,378 posts)

32. Best of luck. Prayers.

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 08:47 AM

Nov 5

58Sunliner

(6,273 posts)

33. Hoping for the very best outcome for you and Rusty! 💗💗💗

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 09:11 AM

Nov 5

CaptainTruth

(8,070 posts)

34. Sending him & your whole family my best wishes!

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 09:13 AM

Nov 5

brer cat

(27,413 posts)

35. Sending prayers for a complete recovery for Rusty.

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 09:22 AM

Nov 5

Stay strong and take care of yourself as well as Rusty.

hamsterjill

(17,142 posts)

36. Sending you and your Rusty all the very best.

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 09:47 AM

Nov 5

My prayers for your both. For him, I pray for healing and strength. For you, I pray for peace and calm. It's hard to watch someone go through an illness. So, please remember to take care of yourself.

Your attitude of gratitude is inspiring.

FemDemERA

(698 posts)

37. Hoping for a fast recovery and

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 11:14 AM

Nov 5

That your family is surrounded by love and caring support.

NNadir

(37,467 posts)

38. What really impresses me, as we wish for a successful treatment and recovery is...

Reply to rustysgurl (Original post)

Wed Nov 5, 2025, 12:44 PM

Nov 5

...your last paragraph:

But, in all of this we have food to eat, a roof over our head, and the love and support of so many. We are lucky.

You are beautiful people to face trouble with this in mind, really wonderful people.

As such, I can only hope on hope that you come through this intact.

May your troubles pass. All the best to the both of you.

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