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KaryninMiami

(3,073 posts)
Sat Jun 14, 2014, 06:16 PM Jun 2014

In remission

Received this great news yesterday after my oncologist reviewed the results of my PET Scan. Amazing news and a big relief, needless to say, not to mention the joy of not having to prepare myself for another round of chemo in about 8 days (competed my sixth and last three day round 10 days ago). As I mentioned in my previous post, my strain of NH Lymphoma is very rare and also very aggressive (AITL T Cell NH) and the possibility of it returning is pretty high. The next step, is to consult with a specialist at Sloan Kettering (in NY) and the director of stem cell transplants at Sylvester (Miami) to discuss their suggestions for higher probability of a cure.

But for now, I am extremely grateful that this chapter of this bizarre journey has come to a close and to all of the amazing people in my life who helped get me through this including making sure I was never alone during a chemo treatment and surrounding me with love and healing.

No idea what's to come next but I am taking things one day at a time and remembering to pay attention to the things that matter most- relishing time with loved ones, doing things I really enjoy, focusing more on being mindful (and connected to my spirituality) and compassionate and healing from what was a rather traumatic experience. And eating ice cream as much as possible!

Thanks to all of you who reached out to me when this adventure began back in January and for anyone on a similar journey who feel like reaching out, feel free. Connecting with someone who's "been there" really does make a huge difference.

6 replies = new reply since forum marked as read
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In remission (Original Post) KaryninMiami Jun 2014 OP
That is great news! Solly Mack Jun 2014 #1
Excellent news ... slipslidingaway Jun 2014 #2
Great news! sinkingfeeling Jun 2014 #3
WOOO HOOOOO!!! 2theleft Jul 2014 #4
Stem Cell transplant? Ruby the Liberal Jul 2014 #5
Good for you Tab Jul 2014 #6

slipslidingaway

(21,210 posts)
2. Excellent news ...
Sun Jun 15, 2014, 12:53 AM
Jun 2014

and happy to hear you can take a breather while you figure out the next steps. My husband had a stem cell transplant at Sloan in 2010 as that was the only possibility of a long term cure. Feel free to PM me if you think I can answer any questions.




Ruby the Liberal

(26,289 posts)
5. Stem Cell transplant?
Sun Jul 13, 2014, 09:09 AM
Jul 2014

I have never heard a first-hand experience from anyone about that. Admittedly, I am not sure what all that procedure helps with, but I find the research (and possibilities) fascinating!

Have you had your consult about it yet?

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