... So sorry to hear this.

a patient's own T cells and reinjecting them into the patient -- it is in trials now, so maybe you could get into a trial? There is also a second procedure with T cells that you should read about. Both are in that article. It's very recent.

Good luck to you.

I agree...fuck cancer.

my heart goes out to you.

I agree, fuck cancer.

and that the results are better than your current vision. From my reading quite a few auto transplants are followed by allo transplant with success, not particularly comforting words, but try and hang in there.

Sucks when it does that. I got to where the cure was worse (it seemed) than the disease. It's a long process. My thoughts are with you.

- Tab

and hoping things are better than they seem.



and yes, fuck cancer.

It's been a tough and terrible week. I'm now on my 3rd and last chemo treatment for this week. Am swollen beyond recognition now (retaining massive amounts of fluids but no one knows why). You wouldn't recognize me from photos taken over the holidays. Also very very tired. Working hard on staying positive and keeping my hopes up- not away needless to say.

Hugs back to you all and thanks again!

Will keep you posted.

I hope there's an answer to the fluid retention ASAP, since that sounds so challenging, even without the rest of the situation... and I just hope you catch a a very BIG break all the way around. Sending hugs and BEST wishes...

Yes this is indeed a bizarre chapter. And presently, extremely uncomfortable. Walking like a healthy person would help a lot- it's deflating but very slowly.

My heart goes out to you and everybody here.

I do not have cancer, but my myriad of so many painful autoimmune diseases draws me over to this site and allows me to empathize and relate. It's like you're getting hit from every direction.

You are very much in my thoughts and prayers.

How are you feeling?

other than it purely sucks! I heard some medical person in the halls last month discussing auto transplants and that they work 50% of the time and have read of other autos and then allo transplants, it does happen with success, but the word relapse does suck.

Hoping you can move forward to an allo and a cure! Keep your eye on the prize and do not let this cloud your path to the future!

It was 7 years ago, and the donor was a stranger. A good friend had an auto transplant for lymphoma and it did not take, so he had an allo transplant from his brother. He is doing very well 9 years later. From what I've heard the auto transplants don't seem to work as well, which makes me wonder why they do them.

as that it quite a milestone!



I recently heard a medical person at Sloan Kettering speaking in the hallway to another staff member (sounded as if he was training another person) who said the auto transplants work about 50% of the time. Just listening to others (at Sloan and the ACS Hope Lodge) it does not seem unusual to have one or two autos followed by an allo. But I guess if it works for half the population it is not a bad start.



One day they will have a better handle as to when and why it works on some people and not on others, seems they are still writing the book.

That's interesting about the 50% statistic for auto- that makes it sound similar to allo.

about auto transplants. So many people I hear about have two autos and then have an allo or maybe eve two, then again we have been in environments where people are there because they have relapsed, we never get to speak to those people where transplants have worked the first time. Never heard of third allo transplants, the doc says they are very rare and with younger people.

Many of the people we have lived with recently are now having haplo-cord transplants, something we did not experience five years ago. All interesting, but wish we never had a reason to know!

sounds like a real rough patch, wishing things have improved!

go 100% organic and do this woman's diet: kriscarr.com. She has lots of tumors, she's done a lot of research on food as medicine, and she's still alive and living a healthy life 13 yrs. after diagnosis with no conventional treatments.

I am Stage 4 that was operable, did chemo and I've been on a 100% organic diet since the operation in Jan. 2014. So far no recurrence. I don't have lymphoma but important point is the food/agric. industry is killing us with chemicals and denatured foods. So my advice is to get off that cycle and go organic. As for the more conventional approaches to dealing, I can't help. I wanted to refuse surgery (but didn't) as well as chemo (I did that one, too). I don't know what I'll do if I have a recurrence, but probably what I did before--research the hell out of the treatments and alternatives, get second or third opinions and talk to people who've been there.

The conventional route is death by a thousand cuts. You're weakened a bit here, a little there. If you're lucky, it works. Maybe you buy a bit of time. I think at some point I would go the alternative route but you never know until you have to cross that bridge and say yes or no to treatments.