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flamingdem

(39,912 posts)
Tue Nov 9, 2021, 11:39 PM Nov 2021

A family member has advanced lung cancer

My closest sibling. I'm in shock. I learned it's in the hylar region from and around the trachea.

I'm going to help manage her case and need to get all the information that I can.

It's just the beginning so the type is unknown. Yesterday a broncoscopy. Tomorrow a pet scan and pulmonary function.

So the genetic testing takes a full three weeks? Is that necessary to know what kind of cancer we're dealing with? Are there ways to find a consultant-cancer expert for a second or third opinion if a quick decision must be made say radiation vs chemo vs immunotherapy if a candidate?

Worried that it is all happening quickly and that I'm absolutely new to this.

17 replies = new reply since forum marked as read
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A family member has advanced lung cancer (Original Post) flamingdem Nov 2021 OP
I'm sorry. Just lost a very best friend to cancer. Best wishes... Enter stage left Nov 2021 #1
Thanks for your good wishes flamingdem Nov 2021 #2
From my experience.... nocoincidences Nov 2021 #3
Yes, it's great for research flamingdem Nov 2021 #7
Holding you and your sibling cilla4progress Nov 2021 #4
Thank you! flamingdem Nov 2021 #8
Best wishes to you and your sibling. CentralMass Nov 2021 #5
Thanks CM flamingdem Nov 2021 #9
So sorry to hear about your sister. I lost my dad a year ago this December. littlemissmartypants Nov 2021 #6
Thanks flamingdem Nov 2021 #10
Thank you. I miss him a thousand times a day. ❤ littlemissmartypants Nov 2021 #12
Oh man, the one ancianita Nov 2021 #11
While I know zero about this cancer, if it moonscape Nov 2021 #13
Thanks for the idea about video conferencing flamingdem Dec 2021 #15
Hopefully it isn't small cell cate94 Dec 2021 #14
Fortunately it's non small cell flamingdem Dec 2021 #16
It usually shows up when it's already metastasized. cate94 Dec 2021 #17

nocoincidences

(2,314 posts)
3. From my experience....
Wed Nov 10, 2021, 12:02 AM
Nov 2021

Make yourself an expert on this particular cancer if you want to be her support and advocate.

Google is definitely your friend, so don't hesitate to research it. Patient groups who all have this cancer can be found and will tell you everything you need to know.

littlemissmartypants

(25,483 posts)
6. So sorry to hear about your sister. I lost my dad a year ago this December.
Wed Nov 10, 2021, 01:39 AM
Nov 2021

It may have already been suggested but a good starting point is the American Cancer Society.

https://www.cancer.org/

Stay encouraged.



ancianita

(38,514 posts)
11. Oh man, the one
Wed Nov 10, 2021, 02:21 AM
Nov 2021

sibling you're closest to. You are tackling this and sound strong.
Please take care of yourself all the while.

It's not so weird anymore, these genetic tests, and can be worth the wait because now that they can do gene editing so stop the cancer. I don't know a lot, but I read about CRISPR Cas9 uses for curing genetically inheritable diseases, and some cancers are in that category.



moonscape

(5,363 posts)
13. While I know zero about this cancer, if it
Wed Nov 10, 2021, 04:00 PM
Nov 2021

is common or not, but my best advice is to seek out the best oncology specialist in it that you can find. Then seek another, anywhere, and get a 2nd/additional opinion via video conferencing.

I know with my cancer, those who do that tend to live longer and have better remission rates, and I tend to think it’s a good idea regardless the life-threatening disease we have. All our research and learning is so we can ask salient questions and understand the answers!

Very sorry your sibling got this news. How fortunate for her that you are there by her side.

flamingdem

(39,912 posts)
15. Thanks for the idea about video conferencing
Sat Dec 11, 2021, 08:56 AM
Dec 2021

I want to get a second opinion from the closest cancer center but it's still too much of a drive.

cate94

(2,888 posts)
14. Hopefully it isn't small cell
Fri Dec 10, 2021, 08:39 PM
Dec 2021

Other lung cancers offer more hope and more time and options. Hoping for the best for you.

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