Depending on her age & location, would a residential rehab facility work? If Over 62 y.o. perhaps a Senior Services caseworker could manage her options

They were a pretty good resource when I was in need of assistance in the State of NJ.
Don’t know where you are but maybe they can help.

$6000/mo. That's about $200/day. Regular at home care, not by professional nurses, might be cheaper. Let us know what you find...
we might need that info one day....

$400 a day, 24/7 care. $6000 every two weeks. Not nurses but caregivers. That's southern California. I hope poster can get some answers.

then, the premiums and coverage have gone up, but I'll bet it hasn't been enough for the amounts we're talking here!

Is she on Medicare? Medicare will cover a home health service to come a few visits per week after a change in condition; a fall at home, a wound, a hospitalization will qualify. A Home Health RN intake employee can help answer your questions.
Her personal physician can order a Home Health consult to see if she qualifies
for care. (She probably will). Ask the Dr.’s office to recommend a service.
Home health is NOT 24hr around the clock care. The nurses just come by for an visit to change dressings, do med treatments. Home Aides can bath patients, change linens and set up or prepare a few meals. They don’t stick around while you go to the store.
A contact list of local home health services may also be a available thru a social worker at the place where she had her chemo or a local hospital.

Also when they say 24 hr care doesn’t mean 24hr around the clock nursing care.
They may mean just a sitter, not a nurse. A neighbor or friend may suffice. In home health in order to qualify the patient MUST be home bound. No driving to the grocery for a quick errand. It means she stays home ALL the time. You can be dropped cold for breaking this rule.
Call your local cancer support group, too. They know who to call and may be able to answer questions. Also the local United Way has some good resources that may help.

Hope this helps.

The person would have to be able to assist in her meals and getting her to and from the bathroom. From what I can discern, she is going to be EXTREMELY weak after the 4 weeks in the hospital.
Thank you for all your suggestions. We will contact them.

you work or must be out of the home on a regular basis. Don’t hire somebody off Facebook or a bulletin board. Sad to say but if you leave her with strangers she could be in a vulnerable spot.


The fewer people going in and out the better for the both of you.

Also try both Catholic Charities & Luthetan Social Services.

If a person doesn't know, ask for referrals to who might know.

Also try your local palliative care organization.

Best of luck!

can help with resource ideas? Have you been to Smart Patients? Don’t know if they have an MDS area, but if not you could tap into the lymphoma area and post your query there. I only k ow the multiple myeloma area but there is a wealth of knowledge ‘monst the patients there so could well be the same in the more common lymphoma area (if not MDS.). Needing caregivers for transplants is a common occurrence for blood cancer patients.

Very sorry you are in this bind and that your transplant team can’t be more helpful, okay at all helpful!

wife’s transplant is scheduled but thinking it could be soon. Any resolution to your human resources issue?

It’s all daunting. Wish I could offer more wind at your back than just words, but if thoughts could yield a gust, mine would be sending a helluva ride!

You just have no idea what it means to have those words said to me/us.
We found out that her brother is only a 50% match, so they are trying to find a donor from the pool. That being the case, we don't know when it will happen.
As far as getting a caregiver, we have a lot of kind people helping us search and we have cashed out our 401ks to help pay for any that we find. As they say, ONE DAY AT A TIME.
Thank you again.

brother not being a match . How extraordinarily stressful.

Hope they find one for her soon. Like tomorrow soon.

but I hope you find help and relief soon. Let us know. You have my prayers.

We, with the help of great friends, have come closer to finding some assistance.

Kicking for visibility.

My heart goes out to wifey & you! I wish you both comfort, ease, joy, strength, and health.




Imagine if all the money & energy that was spent on war had been spent on finding cures & on other ways to help people...