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murielm99

(31,433 posts)
Thu Sep 15, 2022, 11:51 AM Sep 2022

If I was scared before,

now I am terrified.

I don't know how the people here keep up their spirits.

I thought I was getting a pulmonary function test today. Instead, it was just another consultation. The pulmonologist was upset that things were delayed by three weeks. Now she just delayed them more. I am getting a covid test on the 24th and a pulmonary function test on the 27th. I thought my lung cancer had not spread. So did my primary care doc. Now it looks like it may be in my spine. I don't know yet. If it is, they cannot remove it. I will get chemo and radiation only. The only thing I can do is wait.

We don't know what kind of lung cancer this is. We don't know if it is stage three or four. I am beyond anxious.

34 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
If I was scared before, (Original Post) murielm99 Sep 2022 OP
Virtual Hugs. Hate that happened to you. Waiting is the worst. Srkdqltr Sep 2022 #1
Holding you in my heart, Muriel. TygrBright Sep 2022 #2
Go to hospital administrators and call your lawyer Tetrachloride Sep 2022 #3
Ooooooooh, I LIKE this! calimary Sep 2022 #14
I like post #3 !!!! Karadeniz Sep 2022 #4
My warmest thoughts for you. We are here. CurtEastPoint Sep 2022 #5
Keeping you in my thoughts, cilla4progress Sep 2022 #6
May all the good forces of The Universe combine to send strength and healing your way. LoisB Sep 2022 #7
Sending you 💗💗💗💗💗murielm99 MLAA Sep 2022 #8
Muriel, has your oncologist/pulmonologist told you *why* things are so delayed? irisblue Sep 2022 #9
I'm sending you virtual hugs and all the positive vibes I can muster, murielm99. skylucy Sep 2022 #10
I have no words other than MontanaMama Sep 2022 #11
Positive vibes incoming! pandr32 Sep 2022 #12
I'm so sorry you have to go through this. badhair77 Sep 2022 #13
Hugs sent your way, nt LittleGirl Sep 2022 #15
Sending you love and hugs. gademocrat7 Sep 2022 #16
Muriel, I am so sorry. It is stressful enough without delays and incomplete information. brer cat Sep 2022 #17
I can't imagine stage left Sep 2022 #18
Am I missing something? KS Toronado Sep 2022 #19
I prayed for you. God bless. Joinfortmill Sep 2022 #20
That must be beyond terrifying. I will hold out for the results and hope for good news. Please Evolve Dammit Sep 2022 #21
I'm so sorry you are going through this cate94 Sep 2022 #22
I called my primary care physician. murielm99 Sep 2022 #32
You are right to be angry cate94 Sep 2022 #33
virtual hugs from here . anything w the heart is serious . AllaN01Bear Sep 2022 #23
Healing Vibes for you, Muriel! 🤷‍♂️💕 Cha Sep 2022 #24
Sending hugs and vibes for best possible outcome. Your DU family is niyad Sep 2022 #25
I understand completely and it's a truly horrible experience for you to have to go through this. benfranklin1776 Sep 2022 #26
I kept my spirits up by seeing it as a challenge. alfredo Sep 2022 #27
Thank you everyone, for murielm99 Sep 2022 #28
Sending so much love and many hugs to you, muriel. sheshe2 Sep 2022 #29
Sending so much love and many hugs to you, muriel. sheshe2 Sep 2022 #30
My husband says I have to have hope. murielm99 Sep 2022 #34
❤️ I am sorry about the health issues, peacebuzzard Sep 2022 #31

TygrBright

(20,987 posts)
2. Holding you in my heart, Muriel.
Thu Sep 15, 2022, 11:56 AM
Sep 2022

It sounds very scary.

Stay as strong and resilient as you can. Your strength is key.

I know I'm not the only DUer holding you in mind and heart.

lovingly,
Bright

Tetrachloride

(8,447 posts)
3. Go to hospital administrators and call your lawyer
Thu Sep 15, 2022, 11:58 AM
Sep 2022

tell your lawyer to put the hammer down .

if that doesn’t work in 10 minutes , call a TV station

then do a youtube or tiktok video

calimary

(84,306 posts)
14. Ooooooooh, I LIKE this!
Thu Sep 15, 2022, 01:29 PM
Sep 2022

I like the way you think, Tetrachloride!

Hang in there, murielm99. We’ll keep the vigil with you.

cilla4progress

(25,901 posts)
6. Keeping you in my thoughts,
Thu Sep 15, 2022, 12:07 PM
Sep 2022

muriel!

Sounds so scary, indeed.

I know Biden is committing to a cancer moonshot. I hope that good strong energy can come your way.

Holding you in light and love.

LoisB

(8,639 posts)
7. May all the good forces of The Universe combine to send strength and healing your way.
Thu Sep 15, 2022, 12:24 PM
Sep 2022

Hang in there, kiddo.

irisblue

(34,249 posts)
9. Muriel, has your oncologist/pulmonologist told you *why* things are so delayed?
Thu Sep 15, 2022, 01:12 PM
Sep 2022

Do you have a nurse case manager at your hospital?

MontanaMama

(24,013 posts)
11. I have no words other than
Thu Sep 15, 2022, 01:20 PM
Sep 2022

I cannot imagine how scary this is for you. It seems you deserve answers as to why tests are delayed again. It is difficult to advocate for yourself when you're in a place of anxiety and fear.

badhair77

(4,609 posts)
13. I'm so sorry you have to go through this.
Thu Sep 15, 2022, 01:27 PM
Sep 2022

Not having information kicks up the anxiety level. I’m sending you good vibes and hugs with hopes the medical staff can get things moving immediately.

brer cat

(26,253 posts)
17. Muriel, I am so sorry. It is stressful enough without delays and incomplete information.
Thu Sep 15, 2022, 01:39 PM
Sep 2022

I am sending virtual hugs and keeping you in my prayers.

KS Toronado

(19,565 posts)
19. Am I missing something?
Thu Sep 15, 2022, 01:56 PM
Sep 2022

Pulmonary function tests (sometimes called a PFT or PFT test) help diagnose lung conditions such as asthma,
bronchitis, or COPD. If you have already been diagnosed with a particular lung condition, a pulmonary function
test can also determine how well the medication you’re taking for the condition is working.

This test normally isn't for cancer.
They run a PET scan on me to find cancer from top of head to just above the knees.

Evolve Dammit

(18,603 posts)
21. That must be beyond terrifying. I will hold out for the results and hope for good news. Please
Thu Sep 15, 2022, 02:20 PM
Sep 2022

keep us posted.

cate94

(2,888 posts)
22. I'm so sorry you are going through this
Thu Sep 15, 2022, 02:21 PM
Sep 2022

I can’t begin to imagine how frightening this must be. Post 3 has good points. I’d also call my primary care physician and ask for some Xanax.

murielm99

(31,433 posts)
32. I called my primary care physician.
Fri Sep 16, 2022, 07:25 AM
Sep 2022

She is not in today. She has continuing education. I let her CNA have it. A message is being passed along. I threatened to go public with this. I let them know about my condition on July 26. It has been nothing but talk for two months. This could have spread to my spine by now.

I am scared, but also angry. And, dying.

benfranklin1776

(6,578 posts)
26. I understand completely and it's a truly horrible experience for you to have to go through this.
Thu Sep 15, 2022, 02:56 PM
Sep 2022

And I’m very very sorry that you do as I know how stressful that waiting is as it’s horrible on your well-being. That said you still have reason to be optimistic as they found it and now you can focus on treating it which I’m confident you will be able to do!

I would however, as other posters have sensibly suggested, enlist the aid of someone inside or outside of the treatment facility to be your advocate and get them to move with some urgency so you don’t have to endure these horrible delays. I’d start here maybe as they have some good resources to help you find others who will help you through this.

http://cancersupportcommunity.org/

And remember you have all of us who you can vent to any time and who will give you as much support to help you conquer this, which I know you can!

murielm99

(31,433 posts)
34. My husband says I have to have hope.
Fri Sep 16, 2022, 11:43 PM
Sep 2022

Right now I have anger and fear.

I really can't see dying. I see myself alive and doing my activist work for a few more years. I am 74.

peacebuzzard

(5,266 posts)
31. ❤️ I am sorry about the health issues,
Thu Sep 15, 2022, 11:25 PM
Sep 2022

and I pray for a resolution and a full recovery Muriel.
I will look for updates, sending best wishes, stay well,

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