I’m working on 18 mo NED from my unusual recurrence after 15 yrs, so I’m still on the every 3 mo course for awhile.

I have definitely experienced scanxiety. My first go around I hadn’t realized how much it affected me until I actually broke down when I received the all clear letter after my last 5yr appt. This go round I’m all too aware and just go from one appt to the next. My friend calls it a cancer patient’s version of PTSD. She thought her mom was making it up.

Sending best wishes and prayers your way!!!

I'm now shifting for NED for the next 6 months. But it is definitely PTSD, and appointment to appointment. Good luck for your next 3 months.

I've heard of sarcoma popping up after years - even decades - so I don't expect I'll ever think of myself as cured. Simply NED until the next time we revisit the question. I've got a very small bump in the same layer of tissue as the original sarcoma - completly different body part, near surgery for another issue - so I suspect it is a surgical remnant . . . but you never know.

I love news like this. Having a son with a rare cancer I understand all too well about anxiety related to scans.

It's a lot harder when it is a child.

My daughter has a rare disease, which puts her at risk for a half-dozen cancers. She has scans every 6 months both to check for disease progression and for signs of the rare cancers (cholangiocarcinoma and pancreatic cancer) which often aren't symptomatic until it is too late to treat them. Much harder on me than my own scans.

Unfortunately he found out last year that his cancer had a recurrence involving his skull base and two "named nerves" as well as his left orbital nerve. He went through gamma knife last October. The good news was there was no new progression of his lesions in his last scans. So it should give him a couple of years maybe more. . Adenoid Cystic Carcinoma is rare like yours and not much research or treatment for it. But he is positive about living life to the fullest and takes it one day at a time.

Will keep you both in my thoughts for healing vibes. Yes it is harder when its your child.

I love news like this. Having a son with a rare cancer I understand all too well about anxiety related to scans.

Sorry double post but its still great news

Cancer & disease in your town higher than national average?

Even though they can't find the gene. 5 breast cancers in 4 generations (my mom got 2). All post-menopausal, all relatively benign.

Sarcoma is too rare to have good risk factors identified, but one they have identified is herbicides. I grew up in the middle of cornfields, with normal-for-the-time/area use of herbicides.

that countries that used a lot of Round-Up had the highest rates of Autism, and those that prohibited it's
use had the fewest cases. But add in "money in politics" and Congress did nothing, what a shame.
Damn pro-lifers in Congress don't even care about healthy babies.

Rotated crops, etc. But family farming isn't a place that has tons of time or money to do things right.

He was the first in the state to do controlled burning to control unwanted pasture greenery. He also tried goats to rid the pasture of noxious weeds, and replanted the pasture across from our house in native plants. After he retired (and had time to "play", he sectioned off the pasture land to rotate grazing (which forces the cattle to eat everything, not just the things they like best) - doubled the efficiency of that piece of pastureland.

But as a family farmer there's only so far you can go and survive. So sometimes it's not just money in politics, but the economic reality of life as a farmer.

ALONG WITH many folks on this board. I've always valued your intelligent, knowledgeable and thoughtful posts and look forward to many more years of the same.

I can imagine the weight that has been lifted with these latest results, scanxiety or not. We've been dealing with things on our end also and have come to really appreciate the value of hope.

Here's to more continued good news!

a Valentine's Day gift!