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bmichaelh

(609 posts)
Wed Feb 22, 2023, 12:30 PM Feb 2023

Third Remission of Lymphoma

I got the results from my PET scan this week.

I have been in remission for almost 6 months.

I have been living with lymphoma for over 30+ years.

First remission was 13+ years; second remissions was 16+ years; this is my third remissions.

I have NOT forgotten that (TFG) wanted to repeal the ACA and I would have lost my life time limit and pre-existing protections. Before this last remission, my physicians tried 4 different type of treatments and all failed to varying degrees.

Thank all for those at DU who have given me well wishes in the past.


9 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Third Remission of Lymphoma (Original Post) bmichaelh Feb 2023 OP
Sending vibes for a marathon remission this time! Karadeniz Feb 2023 #1
Three times WOW. I can't even imagine. Let's hope some amazing ratchiweenie Feb 2023 #2
Keep on ... Xoan Feb 2023 #3
Can you share what treatment they used that worked? Wishful-Thinking Feb 2023 #4
My brother had a recurrence after 22 years Freddie Feb 2023 #5
Treatment for Remission bmichaelh Feb 2023 #7
👏👏👏👏 irisblue Feb 2023 #6
How wonderful. mercuryblues Mar 2023 #8
Thanks everyone bmichaelh Mar 2023 #9

ratchiweenie

(7,933 posts)
2. Three times WOW. I can't even imagine. Let's hope some amazing
Wed Feb 22, 2023, 12:34 PM
Feb 2023

genetic breakthrough is just around the corner.

Wishful-Thinking

(109 posts)
4. Can you share what treatment they used that worked?
Wed Feb 22, 2023, 12:57 PM
Feb 2023

Congrats on your well-being.

I’m asking for my husband who is deciding what treatment to take for his second recurrence after 18 years.

Freddie

(9,709 posts)
5. My brother had a recurrence after 22 years
Wed Feb 22, 2023, 01:39 PM
Feb 2023

He had an autologous (self) bone marrow transplant in 2019. Almost 4 years later he’s still in remission. Best of luck to your husband.

bmichaelh

(609 posts)
7. Treatment for Remission
Thu Feb 23, 2023, 06:52 AM
Feb 2023

I am so sorry to hear about your news about your husband.
I am very happy to share with you what worked.
Monjuvi and Revlimid
Monjuvi is an infusion given once every 2 weeks.
Revlimid is a pill that you take at home.

My doctor is stopping Revlimid because I have been taken it for a year.
He will continue Monjuvi for the foreseeable future.

I knew that the treatment was working before I even had a PET scan.
I could not walk without a walker but gradually I stopped using the walker.

This was helpful to me in deciding on treatments.
https://www.cancer.org/cancer/non-hodgkin-lymphoma/treating/immunotherapy.html
It lists all of the types of immunotherapies available to non-Hodgkin's lymphoma.
I also created a subscription through Google News because they are developing new treatments for lymphoma.

I wish you all the best.

bmichaelh

(609 posts)
9. Thanks everyone
Fri Mar 10, 2023, 06:48 AM
Mar 2023

Thanks everyone for the well wishes.

Also, I sent a thank you note to President Obama on his website.

May not get a response.

But cancer care costs money and I would not have got my remission without the ACA and its protection against pre-existing conditions and life time limits.

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