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YavapaiBlue

(35 posts)
Thu Mar 9, 2023, 08:31 PM Mar 2023

Prostate cancer

I’m 63, decent shape, waited a month and a half to get a biopsy. Got my biopsy last Thursday. He calls me
yesterday and tells me my Gleason is 3+3. lower level cancer, office will make an appointment to discuss my options, One year ago my PSA level was 3.2. It’s 5.6 now. He said it didn’t change after the biopsy. His office called me today to schedule the follow up April 20th. Are you freaking kidding me? Told them I’m coming in to get all paperwork, images and scans and getting a second opinion. My primary care doctor told me that he could refer me to mayo clinic an hour away in Phoenix. I’m on limited income. Am I over reacting?

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Prostate cancer (Original Post) YavapaiBlue Mar 2023 OP
I am not a Doctor, nor do I have a prostate. irisblue Mar 2023 #1
No experience with this, but I do not believe you are overreacting at all! SheltieLover Mar 2023 #2
Not at all. al_liberal Mar 2023 #3
Thank you YavapaiBlue Mar 2023 #4
Have learned a good amount about prostate cancer recently. TNNurse Mar 2023 #5
Thank you YavapaiBlue Mar 2023 #6
Was three months for me to get a biopsy al_liberal Mar 2023 #7
Waiting is the hardest part YavapaiBlue Mar 2023 #8
A second opinion is... 2naSalit Mar 2023 #9
Getting it caught early is omportant Nac Mac Feegle Mar 2023 #10
Catching it early YavapaiBlue Mar 2023 #11
Sorry to be so late getting back to you Nac Mac Feegle Mar 2023 #12

irisblue

(34,265 posts)
1. I am not a Doctor, nor do I have a prostate.
Thu Mar 9, 2023, 08:34 PM
Mar 2023

Last edited Thu Mar 9, 2023, 09:35 PM - Edit history (1)

I firmly believe a second opinion is a good thing.

Signed a retired Radiation Therapist/Radiographer

SheltieLover

(59,610 posts)
2. No experience with this, but I do not believe you are overreacting at all!
Thu Mar 9, 2023, 08:35 PM
Mar 2023

Healing vibes on yhe way to you. 💓💓💓

al_liberal

(430 posts)
3. Not at all.
Thu Mar 9, 2023, 08:39 PM
Mar 2023

You should seek a second opinion regardless. There are also other places you can gather a lot of information quickly. Healthunlocked prostate cancer group and inspire prostate cancer are both great sites. You can Google them they’re free to join. They helped me get myself educated very quickly and my PCa was very high risk.

TNNurse

(7,125 posts)
5. Have learned a good amount about prostate cancer recently.
Thu Mar 9, 2023, 08:48 PM
Mar 2023

My husband is 73, his PSA went from 5-11 in six months. Gleason scale high enough to put him in highest level. Biopsies were positive on one side...negative on the other. Had negative bone scan and abdomen CT. Spreads to bone and lymph nodes if untreated. Is going to have radiation treatment and anti-testosterone therapy. Unhappy, stressed and worried.

You need to know what you need to know...go see another doctor.

YavapaiBlue

(35 posts)
6. Thank you
Thu Mar 9, 2023, 09:05 PM
Mar 2023

Thank you, urologist said he found cancer on one side. I’m glad they caught it early. I’m just upset. It seems like they’re dragging their feet. This is my damn life, if he has options I want to see them but yeah I can always get another urologist.

al_liberal

(430 posts)
7. Was three months for me to get a biopsy
Thu Mar 9, 2023, 09:15 PM
Mar 2023

I was so pissed I couldn’t see straight. Tried to get another urologist but starting over would have taken just as long. Nothing happens as quickly as we’d like it to. The good news is studies show there were no treatment outcome differences between groups that were treated immediately vs waiting 6 months.

YavapaiBlue

(35 posts)
8. Waiting is the hardest part
Thu Mar 9, 2023, 10:52 PM
Mar 2023

Thank you for your response, I just want to know what my options are, and get this ball rolling

Nac Mac Feegle

(978 posts)
10. Getting it caught early is omportant
Sat Mar 11, 2023, 09:43 PM
Mar 2023

Especially if there's a strong family history. My PSA started creeping up over 4.0, and the GP referred me to a Urologist. He was originally going to watch the levels, but then i mentioned that I'd lost an uncle to it. He immediately scheduled a biopsy. Out of the 12 samples, 4 were positive and 5 were pre-cancerous.

Wound up at a clinic in Phoenix for radiation therapy, 5 days a week for 9 weeks. That was 6 years ago.

PSA has been 0.2 and 0.1 for the last 3 years.

Talking with a cousin a couple years ago (his daughter), he had a VERY bad time of it toward the end.

YavapaiBlue

(35 posts)
11. Catching it early
Mon Mar 13, 2023, 10:22 AM
Mar 2023

If you don’t mind me asking, did you go to mayo clinic in Phoenix? besides John Hopkins, I heard they’re the best I can’t remember if any of my uncles died of it I know my dad didn't Was reading a lot of men will die with it but not from it if you catch it early like you said, Thank you for your input

Nac Mac Feegle

(978 posts)
12. Sorry to be so late getting back to you
Wed Mar 22, 2023, 07:01 PM
Mar 2023

I’ve been busy with my work.

I did my radiation therapy at Prostate Cancer Center of Phoenix, on 19th avenue, just a few blocks north of the 101. A very nice and caring group of people.

I was referred by Arizona Urology Specialists of Glendale.

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