Cancer Support
Related: About this forumThings are not great.
The lung tumor has shrunk and the oncologist is now scheduling my scans six months apart rather than three. I thought things were going great. I kept telling him there was blood in my sputum. He wasn't worried. Then he told me to see the pulmonologist if I had concerns. She might tell me there was nothing to worry about.
I went to see her. She is worried. The tumor has definitely shrunk, but there is moisture underneath it, at the bottom of my lung. This is in my lower left lobe, down near the bottom. The tumor was only 1B, with no lymph node involvement. Stereotactic radiation seemed the best way to go. I have not had chemo. Pulmonologist says tumor could be growing. I don't have enough lung capacity to tolerate a resection or a removal of the tumor. I guess it would be chemo, if I need further treatment. I don't know for sure.
I am having a THIRD bronchoscopy after Thanksgiving. I will let you know. I am scared and angry. Cancer sucks.
I was diagnosed last August. I thought I still had time left in my life. I am 75, but I still have things to do.
calimary
(84,306 posts)Were all pulling for you, and waiting for updates from your journey.
Keep visualizing the color green. Green symbolizes health, vitality, Spring, new growth and renewal and rebirth.
HUGS-HUGS-HUGS!!!
murielm99
(31,433 posts)Laurelin
(642 posts)I hope that further testing will give you reassuring news.
riversedge
(73,118 posts)multigraincracker
(34,068 posts)hlthe2b
(106,328 posts)what you have said and what your pulmonologist is reporting. So, hold on to that, please
You are in my thoughts, hopes, and well wishes.
murielm99
(31,433 posts)I am speculating at this point. I don't really know anything.
applegrove
(123,111 posts)Duncanpup
(13,688 posts)BoomaofBandM
(1,922 posts)ms liberty
(9,825 posts)sheshe2
(87,464 posts)You are a strong woman however we are here for you every step of the way.💙
brer cat
(26,250 posts)TygrBright
(20,987 posts)XanaDUer2
(13,829 posts)virgdem
(2,205 posts)onecaliberal
(35,787 posts)Evolve Dammit
(18,603 posts)Sincerely hope you get some positive vibes and results in the very near future. Take care
Fritz Walter
(4,349 posts)Went through a similar ordeal 4 years ago. Even got to ring the bell at the treatment center. Getting there was a challenge, including a botched Bronchoscopy.
Im basically on the same follow-up schedule: CT every 6 months. Last one showed the ground glass tissue in that lung has dissipated.
Im grateful and glad that they caught the tumor early. And that I had access to some quality care.
Hang in there!
🥰
murielm99
(31,433 posts)Thank you.
Thank all my fellow DU members for the support!
appalachiablue
(42,903 posts)Ziggysmom
(3,569 posts)After Thanksgiving we are both getting tattoos that say "Fuck Cancer". I'm 64 and getting my first tattoo. This I actually want on my body and want to tell the world.
FUCK CANCER! May it go away like smallpox and become something future generations only read about.
Fla Dem
(25,679 posts)All the best to you. I hope you have family and/or good friends to lean on as you go through this ordeal.
Warpy
(113,130 posts)so let's hope when they do the bronchoscopy they just finds some damaged blood vessels in the area and cauterize them.
Cancer sucks. If you weren't frightened and angry, you'd be crazy.
murielm99
(31,433 posts)My lung capacity is reduced because of the stereotactic radiation. It fried a lot of healthy cells around the tumor and I have a lot of shortness of breath that I did not have before. That area of my lung may never recover.
I hope you are right about the damaged blood vessels. I will do what the doctors recommend.
Thanks for your support.
sueh
(1,870 posts)PortTack
(34,642 posts)ancianita
(38,514 posts)improvement, murielm99.
This medical machinery can't help if it doesn't know where to help, so hang with them and never be afraid to ask questions, even of the technicians, and demand honesty and their best opinions.
Try to consider every new day in between as one where you enjoy the world, those whose companionship you value, and where you have the chance to do at least one one thing you still want to do.
We're here. Not going anywhere.
COL Mustard
(6,883 posts)Best thoughts and wishes in your fight against that damn disease.
LoisB
(8,639 posts)I am going to hope for good news from the pulmonologist. Please keep us up to date. Hugs.
BaronChocula
(2,517 posts)by allowing yourself to feel your feelings. Hope you find a way to laugh here and there. And hope you find a way to enjoy your Thanksgiving.
DarthDem
(5,361 posts)You're such a great and valued poster here. You got this!! All the best.
LetMyPeopleVote
(154,421 posts)KatK
(209 posts)SouthernDem4ever
(6,618 posts)Here's to beating it!
cate94
(2,888 posts)And hope for the best outcome.
Joinfortmill
(16,377 posts)UpInArms
(51,793 posts)I wish I could be there with you to give you support and hugs.
But, all I can do is send you virtual (((((hugs))))) and say how much I admire you and your wisdom and strong heart. You are definitely not finished and I hope that whatever treatments you endure, give you many more years.
💕💕💕🫂🫂🫂
DFW
(56,514 posts)See people who know about it, get advice, hope that the advice isn't overly contradictory, and try to tough it out.
Both of my parents had cancer and so did ALL of their siblings. I already lost a cousin to brain cancer (à la McCain and Teddy Kennedy) at age 41. With me, it's not "if" but "when." I'm in no hurry.
My wife has already had it twice. She beat it both times, even though the second time, it was one of those "always fatal" versions. She was that one in ten thousand for whom it wasn't. Here's hoping your physicians find a way to put you in that category, too.
murielm99
(31,433 posts)I hope she stays healthy, and you too!
Thank you for your encouragement. Thanks to all the supportive DU members.
DFW
(56,514 posts)It is rare, only strikes women who are elderly (she was 64 at the time) or very slender. At 5'10" and 130 pounds, she qualified. It is classified as "always fatal," with maybe on in ten thousand surviving it. My wife's diagnosis was by pure accident, just a tiny spot with zero manifestations. The reason it is called the murderer is that it is completely silent. By the time it shows, it is too late.
With my wife, it was three tiny spots on her uterus during a routine exam due to some tiny bleeding. The doctors said they were too tiny to be anything significant, but since she had already had cancer once (breast cancer at age 49), they'd biopsy the three spots just to be absolutely sure. On a woman with no cancer history, they probably wouldn't even have bothered. Two of the spots were indeed nothing, but the third one turned out to be The Murderer.
She was sent immediately to a specialty clinic that fortunately happened to be right here in Düsseldorf. We talked with the surgeon, who told us flat out that the murderer usually always claimed its victim, but he also said that he had NEVER seen it in this early a stage. They did a 5½ hour operation that left her in such pain when she woke up, she made liberal use of a spinal infusion of morphine any time she pressed the button. They only left that in a couple of days to prevent risk of infection. In such operations, they apparently usually take 10-15 biopsies to see if the cancer has spread, and if so, where. In her case, they took 84 biopsies (!!!). It took three days to get the results, but ALL 84 came back negative, something he said he had never seen before. The surgeon called us in, and gave us his opinion. He said usually a round of chemo was standard, but he thought that after the operation and the biopsy results, he thought that this one time, he had really gotten it all. He said it was her/our option, but this one time, he said he thought no chemo would make a difference. She remembered how awful the chemo was after her breast cancer, and said she was willing to take the risk, if he thought it was 50-50 that it would make no difference. That was 7 years ago, and she feels and looks fabulous for someone who is 71 and has had cancer treatment twice. She looks fabulous even for someone who is 71 and has had nothing at all.
So, while everyone is different, and I hope I can put up such a show of fortitude when it's my turn, she is a shining beacon for what can happen if you at least give yourself a chance in your own mind. I hope you have a few similar rabbits in your own hat, even if you have to scrounge around for them. Always keep a few carrots around just in case.
Goddessartist
(2,067 posts)Sending lots of love and positive vibes to you murielm99!
CaptainTruth
(7,210 posts)BigOleDummy
(2,274 posts)While I don't have cancer yet I do have severe copd and its affiliated curses. Last biopsy was ok and the cysts in my lungs ,at least the BIG one was shrinking. Moved my cat scans back to every 6 months from 3 too. My supplemental oxygen is steadily increasing. Getting tired of hauling that damn oxygen bottle around lol. Worst part for me is knowing I did this to myself. At least yours isn't that. Hey, take all the solace you can.
Hoping for you!
murielm99
(31,433 posts)I smoked for a long time. I quit many times, and finally scared myself out of it a few years ago. I am told that the tumor has been there for a long time. One day, it just woke up and decided to grow.
pandr32
(12,165 posts)Please try to involve yourself in the holiday season as much as you can. My hope is that it will brighten things for you some.
I hope your Thanksgiving is a pleasant one, and shared with loved ones.
I also wish your next scan shows no growth.
RestoreAmerica2020
(3,457 posts)Taraman
(398 posts)I hope you qualify for the new immunotherapy treatments, like atezolizumab. It seems to be a game changer for adenocarcinoma lung cancer. Minimal side effects.
murielm99
(31,433 posts)shortly before the doc involved with it told me I was not eligible because of my ambivilance.
He was a shit who seemed to believe the p.r. stuff about doctors being gods. He did not care about me. I did not seem to be a person to him, only another statistic or number for his trials.
Taraman
(398 posts)I was 2B. Had a lobe removed. Just finishing a year's worth of immunotherapy infusions. Cancer free now.
murielm99
(31,433 posts)The pulmonologist says I would not tolerate a lobe removal or resection. I don't know where we go from here.