Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

hedgehog

(36,286 posts)
Fri Jun 28, 2013, 01:06 PM Jun 2013

Clinical trial for Sjogren's Syndrome recruitig volunteers:

The purpose of the study is to find out if the experimental study agent, baminercept, is effective in treating patients with Sjögren's syndrome. The study will also determine if the study agent can be safely given to patients with Sjögren's syndrome; examine how it affects symptoms of the disease; and attempt to understand how baminercept affects the underlying mechanisms of Sjögren's syndrome and the immune system.

http://www.clinicaltrials.gov/ct2/show/NCT01552681?term=NCT01552681&rank=1


I'm not eligible because of one of my scripts

3 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Clinical trial for Sjogren's Syndrome recruitig volunteers: (Original Post) hedgehog Jun 2013 OP
I think I'll pass, thanks Warpy Jun 2013 #1
I hear you! I just wanted to pass the word. As I said, hedgehog Jun 2013 #2
Not up to being a guinea pig.... mimi85 Jun 2013 #3

Warpy

(113,130 posts)
1. I think I'll pass, thanks
Fri Jun 28, 2013, 01:09 PM
Jun 2013

The biologicals scare the hell out of me. Not only am I colonized with every bug known to man after 25 years in nursing, I seroconverted to Hep B before there was a vaccine, probably due to a job back in the Paleolithic when I gave injectable drugs with glass syringes and reusable needles.

hedgehog

(36,286 posts)
2. I hear you! I just wanted to pass the word. As I said,
Fri Jun 28, 2013, 01:24 PM
Jun 2013

I can't go on the study because of one of my scripts that i don't want to give up.

mimi85

(1,805 posts)
3. Not up to being a guinea pig....
Sun Jun 30, 2013, 07:27 PM
Jun 2013

It's amazing when you mention Sjogren's to a health professional and they get a blank look on their face. I have leukemia (CLL) and a host of other autoimmune issues, but Sjogren's has to be the worst thing I've ever experienced. It really affects pretty much every aspect of life. No sun, skin like sandpaper, intimacy problems (oh joy), mouth problems (this one is particularly awful, at least for me), dry eyes, nose, ears, etc, etc.

Well, I certainly don't need to tell either of you. I had to diagnose myself by researching on the net as no doctor had a clue when I went to anyone other than a rheumatologist. I've been to three and they all seemed a bit clueless as well. And the drugs (such as they are) are beyond expensive even with fairly good insurance and they didn't help anyway. One of them (can't remember the name at the moment), I never even tried as the side effects seemed horrendous! Ok, rant over. Take good care and keep us posted if you hear anything positive from the trial.

Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»Clinical trial for Sjogre...