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Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»Looks like I have Familia...
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Chronic Health Conditions Discussion and Support

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multigraincracker

(33,999 posts) Mon Jun 28, 2021, 09:03 AM Jun 2021

Looks like I have Familial transthyretin amyloidosis.

It's an orphan disease and pretty rare. My brother has it and looks like what my dad had too.
Looks like there is one clinic for it here in Michigan. Brother is getting a DNA test to make sure. Dad made it to 90, but blind and couldn't walk and kidney failure got him.
Looks like a couple of new meds are out now. Other than that a liver transplant is the most common cure.
I'm thrilled to be in the shape I'm in for my age. Another 20 years would be great.

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Looks like I have Familial transthyretin amyloidosis. (Original Post) multigraincracker Jun 2021 OP
Check this out: intrepidity Jun 2021 #1
thanks, that is it. multigraincracker Jun 2021 #2
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Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»Looks like I have Familia...
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