https://www.cdc.gov/me-cfs/index.html



I was told back in the late 70's it was all in my head, except for one well-respected Internist who believes me, my symptoms, and unusual markers.

I'm so glad the medical community recognizes that some of us do not completely recover for yrs and sometimes decades.

He's done a lot of reading up on that. He says it's definitely autoimmune.

Is an autoimmune disease?

Personal history of my problem, for what it's worth:
Back in the '70's, my husband and I had the most severe flu that we had ever had; so bad in fact, that my mother drove 80 miles to bring us home with her. We were very sick for at least 3 wks; after that, recovery was very gradual, up to a point.

We continued having low-grade temps and I had terrible night sweats. We sought medical help from many experts, even at a medical school, yet they all were puzzled. One Doc told us that it looked like malaria to him.

My hubby finally recovered after some months but I didn't. The low-grade temps and terrible night sweats continued with me off and on for decades but intensified after the birth of my son when I was very stressed. I had to sleep on bath towels to keep from soaking the bed every night. Sadly, I've never recovered the stamina I used to have.

The famous CFS/ME expert Dr. Paul Cheney, whom I saw after the birth of my son, told me to stop nursing. Fact was that I simply stayed too exhausted to prepare bottles of milk, so I continued to nurse.

(Sadly, Dr Cheney died last year. It was from his obituary that I learned not only was he an internist, he also had a PhD in physics.)

The worst was being accused by uninformed, dumb people of having a psychosomatic disorder, as if elevated temperatures and horribly intense night sweats were psychosomatic.

If it is an autoimmune disease, my immune has been horribly dysfunctional and has badly affected my life. It's strange that my husband's illness would parallel mine but only for some months, not yrs.

Thanks for reading.

I dunno. We haven't talked about that, having had more pressing problems recently with our other brother, who's had a severe autoimmune disorder of another kind, autoimmune limbic encephalitis. We thought we'd lost him, or at least the person he was, but amazingly, he's coming back. Still has some memory problems and occasionally searches for a word, but we are just wowed by his recovery. So discussions of other types of autoimmune disease, in which we both have a great interest, have kind of taken a back seat recently.