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happybird

(5,092 posts)
Mon Apr 11, 2022, 09:57 AM Apr 2022

Going to the Dr. today for testing

Strongly suspect I’ve got Lyme, but it may be RA. Been putting it off because I hate going to the doctor. Rationalizing it away as “I’m getting old, just need to adjust,” and “it’s only pre-menopause symptoms, I just have to adjust.”

And now I’ve hit the wall. The random joint swelling, pain, migraines, and constant exhaustion have become too much to ignore.

Getting more nervous the closer I get to the 3:30 appointment time. Meeting my Mom for lunch at 1:00, so that will help a lot.

Thanks for listening.

35 replies = new reply since forum marked as read
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Going to the Dr. today for testing (Original Post) happybird Apr 2022 OP
Hope the visit goes well and you get some answers and treatment. Irish_Dem Apr 2022 #1
Thank you. :) happybird Apr 2022 #3
Good luck. I hope it's something easily treated. It's so nerve-racking going to the doctor Walleye Apr 2022 #2
Thank you happybird Apr 2022 #4
If you're pre menopause you're far from old. blueinredohio Apr 2022 #5
That's what my boss pointed out happybird Apr 2022 #6
Trust your instincts pandr32 Apr 2022 #18
You're right! blueinredohio Apr 2022 #25
I 100% hate to go, also. Gotta be really miserable to make that appointment Peregrine Took Apr 2022 #7
Mine was partially motivated by doing my taxes, lol happybird Apr 2022 #9
Tell doc you want lyme test sent to Igenex in CA. SheltieLover Apr 2022 #8
Thank you! happybird Apr 2022 #11
Docs & hospitals are contracted with labs, so if s/he won't send there SheltieLover Apr 2022 #13
I agree with SheltiLover about diagnosing Lymes, gab13by13 Apr 2022 #20
Quite telling you cannot find a lyme doc on google SheltieLover Apr 2022 #27
Wow! Good info. Duppers Apr 2022 #16
It is poligical. In 2020, nearly 100 MDs had licenses revoked, just for dxing lyme. SheltieLover Apr 2022 #26
Shouldn't be shocked but I am. Duppers Apr 2022 #28
Story used to be up at faim.org SheltieLover Apr 2022 #29
Had to look up "Operation Paperclip" Duppers Apr 2022 #31
Saw the results from the Igenex Immnoblot today happybird Apr 2022 #34
I am so glad you have a great doc! SheltieLover Apr 2022 #35
Wishing you well. gademocrat7 Apr 2022 #10
Thank you. happybird Apr 2022 #12
I know the feeling. Delmette2.0 Apr 2022 #14
All the best happybird and let us know how it goes when appalachiablue Apr 2022 #15
Holy shit, I'm in the Dr's office right now wondering the same thing. dem4decades Apr 2022 #17
How are you doing? happybird Apr 2022 #32
Thanks for asking. My Dr appointment was a bit of a bust, it was for my GP to go over a blood dem4decades Apr 2022 #33
Migraine Rebl2 Apr 2022 #19
I was 50 when LittleGirl Apr 2022 #21
Wishing you well oldtime dfl_er Apr 2022 #22
Absolute best of luck to you! BobTheSubgenius Apr 2022 #23
regarding the joint swelling... Grasswire2 Apr 2022 #24
some doctors like you to think of them as your partner in health NJCher Apr 2022 #30

happybird

(5,092 posts)
4. Thank you
Mon Apr 11, 2022, 10:02 AM
Apr 2022

Sounds weird to say, but hoping it’s Lyme. My Aunt has RA and has had a hell of a time dealing with it.

happybird

(5,092 posts)
6. That's what my boss pointed out
Mon Apr 11, 2022, 10:13 AM
Apr 2022

Being this sore and swollen, limping around on the bad days that I can actually leave bed, isn’t normal for someone my age (48). I’ve been very rough on my body but not like a professional athlete or someone who has worked years of hard, manual labor. Something isn’t right.

pandr32

(12,145 posts)
18. Trust your instincts
Mon Apr 11, 2022, 11:59 AM
Apr 2022

Hormones are not your issue. Hopefully you have a doctor who takes you seriously and will chase this down.
Best to you.

blueinredohio

(6,797 posts)
25. You're right!
Mon Apr 11, 2022, 01:03 PM
Apr 2022

Something isn't right. Get it checked out and keep us informed. Your symptoms and the diagnosis may help someone else.

Peregrine Took

(7,502 posts)
7. I 100% hate to go, also. Gotta be really miserable to make that appointment
Mon Apr 11, 2022, 10:16 AM
Apr 2022

I'll be thinking of you at 3:30 and will send good thoughts your way.

I have a surveillance colonoscopy scheduled in June and 'am already dreading it!!

happybird

(5,092 posts)
9. Mine was partially motivated by doing my taxes, lol
Mon Apr 11, 2022, 10:20 AM
Apr 2022

I owe this year (grrr) for taking the tax credit on my marketplace insurance plan. Figured I’ve got to pay for this insurance that I have never even used... might as well go in. Ugh. Plus, I’m tired of feeling like crap all the time.

Thank you for your kind thoughts.

SheltieLover

(59,500 posts)
8. Tell doc you want lyme test sent to Igenex in CA.
Mon Apr 11, 2022, 10:18 AM
Apr 2022

I dealt with the lyme nightmare 20 yrs ago, the deepest, darkest rabbit hole imaginable.

Yet, we cured it.

Lyme should be a clinical dx, but all too many docs require a western blot which specifically excludes bands most common.

It is also a very complex disease, frequently present with various coinfections and, as such, needs experienced docs to look at specimens.

Btw, last I heard, igenex does not accept insurance. (No interest in igenex, other than informing you of the only honest place I know of to send testing. Again, last I heard Mayos has never confirmed a lyme dx.)

Best of luck on your appt.

happybird

(5,092 posts)
11. Thank you!
Mon Apr 11, 2022, 10:31 AM
Apr 2022

I will definitely tell him that- wrote the name down in the notebook I’m taking.

The variety of symptoms I’m having are so odd, especially in the way they come and go.

SheltieLover

(59,500 posts)
13. Docs & hospitals are contracted with labs, so if s/he won't send there
Mon Apr 11, 2022, 10:55 AM
Apr 2022

Have her or him write an order for the test.

The sample might need to be processed differently than what they normally do.

Best to peruse their website & maybe give Igenex a call to ask about the procedure. You might need to order a specific test kit directly from them.

They are very nice & VERY knowledgeable about lyme & coinfections.

https://igenex.com/

gab13by13

(24,933 posts)
20. I agree with SheltiLover about diagnosing Lymes,
Mon Apr 11, 2022, 12:28 PM
Apr 2022

Have no idea where you live but a reputable Lyme's expert is Dr. Joseph Joseph (no I didn't stutter) in Hermitage, Pa. He is fantastic for treating Lyme's, very hard to get to see.

Also, if it is Lyme's it matters when you were bitten. My wife got Lyme's and she had the bullseye rash on her arm.

SheltieLover

(59,500 posts)
27. Quite telling you cannot find a lyme doc on google
Mon Apr 11, 2022, 01:07 PM
Apr 2022

At least, not in most states.

Very very deep, dark rabbit hole.

I hope your wife is cured.

Duppers

(28,244 posts)
16. Wow! Good info.
Mon Apr 11, 2022, 11:55 AM
Apr 2022

Sorry you had to go through that.

Folks would be surprised to find out how difficult getting diagnosed with some diseases really is. There are now software programs to help but few physicians use them, I think.

SheltieLover

(59,500 posts)
26. It is poligical. In 2020, nearly 100 MDs had licenses revoked, just for dxing lyme.
Mon Apr 11, 2022, 01:05 PM
Apr 2022

Very deep, dark, ugly rabbit hole.

happybird

(5,092 posts)
34. Saw the results from the Igenex Immnoblot today
Wed Apr 20, 2022, 11:16 PM
Apr 2022

It’s definitely Lyme.
Tested positive on 9 bands in the igG section and 2 bands in the igM section.
Looks like I’ve had it for quite some time (according to my research). Still waiting for the doc to call and discuss, saw the test results on my online patient portal thing.

He started me on doxycycline late last week when the ELISA came back positive.

Delmette2.0

(4,260 posts)
14. I know the feeling.
Mon Apr 11, 2022, 11:07 AM
Apr 2022

I have been there done that. It is always good to know what is going on or to put a name to the problem. My weird stomach pains and other digestive problems was colon cancer. A quick surgery with a very caring surgeon and follow ups, problem solved.

Be prepared to ask questions when you get the results. Take someone with you or ask to record the visit. You should also get a printed copy of the results for all the tests.

dem4decades

(11,886 posts)
17. Holy shit, I'm in the Dr's office right now wondering the same thing.
Mon Apr 11, 2022, 11:58 AM
Apr 2022

Waiting to get called in. At least the Lyme/ RA worries.

dem4decades

(11,886 posts)
33. Thanks for asking. My Dr appointment was a bit of a bust, it was for my GP to go over a blood
Sat Apr 16, 2022, 07:09 AM
Apr 2022

test that was just a cholesterol check, but I had also blood drawn by a hematologist and had that sent to her too. I was hoping to go over all of it with her, turns out none of the blood data had been sent to her and my wait in the waiting room and the office visit was for naught. I have an appointment with the hematologist in a couple of months, I guess no news is good news. My joints (especially legs) are starting to feel better and I'm walking a lot better. How are you? I tried to search for your posts but couldn't figure out how to do it here,

Rebl2

(14,603 posts)
19. Migraine
Mon Apr 11, 2022, 12:12 PM
Apr 2022

not usually a symptom of RA. Sometimes it takes time to figure out if it’s RA. The blood test for it isn’t really reliable. Have had it since I was nine yo. and they did blood test for RA and sometimes it would be positive and sometimes negative. They seem to go by symptoms and x-rays of affected joints. Wish you good luck.

LittleGirl

(8,403 posts)
21. I was 50 when
Mon Apr 11, 2022, 12:30 PM
Apr 2022

I was diagnosed with Thyroid disease.
I had days where my joints ached so bad, I limped.
I had hormone problems as I started menopause at 37 and had it all removed at 44.
The joint pain ended up being gluten and potato intolerance.
No kidding, gluten and potatoes just hurt me.

Good luck! Let us know how it goes!

BobTheSubgenius

(11,775 posts)
23. Absolute best of luck to you!
Mon Apr 11, 2022, 12:34 PM
Apr 2022

As Red Green used to say at the end of one of his recurring segments "I'm rooting for ya. We're all in this together."

As I've been known to say "Getting old ain't for sissies."

Grasswire2

(13,702 posts)
24. regarding the joint swelling...
Mon Apr 11, 2022, 12:40 PM
Apr 2022

..was gout ruled out?

I, the least likely person to have gout, was just diagnosed with it. I don't drink alcohol, don't eat rich food. But I have gout.

Affecting my lower limbs and feet.

NJCher

(37,743 posts)
30. some doctors like you to think of them as your partner in health
Mon Apr 11, 2022, 02:11 PM
Apr 2022

Because my doc wasn't covered on my new insurance plan I had to get another one.

On the first visit we had so much fun talking that she said this isn't like work, it's like girlfriends getting together for coffee.

She had to quit because of Covid so I got a new doc and we have a good relationship like that, too.
When we see each other it's like old friends.

It sure takes the angst out of doctor visits.

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