Chronic Health Conditions Discussion and Support

cali

(114,904 posts) Thu Jul 5, 2012, 12:57 PM Jul 2012

I'm just having such a hard time with the pain.

Nothing is working. Not the percocet or the morphine. I feel like it's making me crazy. I do a lot of deep breathing and visualization, but it's so pervasive. I'm completely shut in. I can't even go downstairs. I have to keep my leg elevated all the time. Oddly, I'm glad I live alone. I'm all set up upstairs with a mini fridge/freezer and microwave and toaster oven, but I don't feel like eating much of anything. I'm waiting to get into the pain clinic at either Fletcher Allen in Burlington VT or Dartmouth Hitchcock in Hanover NH, but that won't happen (even with the priority referral for another 10 days to two weeks.

I feel like I'm hanging on by my fingertips.

12 replies

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I'm just having such a hard time with the pain. (Original Post) cali Jul 2012 OP

Try to stay strong my friend jaysunb Jul 2012 #1

Sometimes it's like that Warpy Jul 2012 #2

I'm so sorry to hear of this. It's not "just" pain, hedgehog Jul 2012 #3

I'm posting this so you can tell me to go stick my head in a bucket, hedgehog Jul 2012 #4

+1 MannyGoldstein Jul 2012 #5

thanks, but I'm not allowed Ibuprohen cali Jul 2012 #6

I'm caught between wanting to help and trying not to be annoying! hedgehog Jul 2012 #7

annoying? not in the slightest. cali Jul 2012 #8

Here's hoping that the healing process will start to kick in. hedgehog Jul 2012 #9

Cali, has the new med helped with the pain? auntAgonist Jul 2012 #10

it's just a higher dose of morphine. and it doesn't seem to help much. cali Jul 2012 #11

Can you get a different med? Taverner Oct 2012 #12

jaysunb

(11,856 posts)

1. Try to stay strong my friend

Reply to cali (Original post)

Thu Jul 5, 2012, 01:39 PM

Jul 2012

visualize good times and pleasant thoughts....my thoughts are with you.

Warpy

(113,130 posts)

2. Sometimes it's like that

Reply to cali (Original post)

Thu Jul 5, 2012, 02:32 PM

Jul 2012

but you have to focus on hanging on until you start going to that pain clinic. They have treatments at their disposal like intraspinal pumps with long acting morphine analogs and nerve blocks that the average doc in practice doesn't have. They can very likely come up with something for you that will get the screaming pain down to a dull roar, at the very least.

In the meantime, can someone get you some Ensure or SlimFast? Sometimes those shakes will go down even when the pain makes you feel like you're going to puke and you do need to keep your nutrition up so the pain people can do their magic.

They'll also introduce you to non drug methods to help the drugs along. I do jhana meditation, myself, and it does work when nothing else seems to.

Good luck. Pain clinic people have a very good chance at making you able to cope well enough to start living again. You just need to hang on long enough to get there.

And if it gets to the point where you are suicidal, don't hesitate to get to an ER. An admission for pain control is not out of the question, either.

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