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Coming out of a flare, getting back to normal - (Original Post) hedgehog Jul 2012 OP
Been there done that Warpy Jul 2012 #1
Do you have some type of libodem Jul 2012 #2
Sjogren's syndrome - which is mnore or less invisible to other people. hedgehog Jul 2012 #3
my friend has that libodem Jul 2012 #7
The good effects don't wear off Warpy Jul 2012 #8
Thanks for letting me vent- it helps to get my thoughts in order. hedgehog Jul 2012 #4
I'm so glad that you're getting a bit of a respite! cali Jul 2012 #5
Oh Cali - hang in there! Nothing is worse thatn pain that won't even let you sleep! hedgehog Jul 2012 #6

Warpy

(113,130 posts)
1. Been there done that
Sat Jul 7, 2012, 12:35 PM
Jul 2012

I'm getting over a drug trial that did nasty things to my kidneys. I'm still too waterlogged to wear rings or sandals but it's reversing slowly and my energy level is improving somewhat.

I'm in the same boat, looking at this midden I jokingly call my home and thinking it might be time for the front end loader and dumpster or maybe even the crew from "Hoarding: Buried Alive."

If we hadn't gotten recycling wheelie bins a couple of months ago, this place might look like a hoarder house. I can manage to throw recycling into a bin but boxing, bagging and tying it up was beyond me for a while.

libodem

(19,288 posts)
2. Do you have some type of
Sat Jul 7, 2012, 01:12 PM
Jul 2012

Immune disorder, like lupus? Those sure do leave a person down for a while. Feel even more better, soon.

hedgehog

(36,286 posts)
3. Sjogren's syndrome - which is mnore or less invisible to other people.
Sat Jul 7, 2012, 01:15 PM
Jul 2012

I've called it "lupus lite" to explain it to other people. It won't kill me, just make me miserable!

Right now I'm on my first trial of prednisone. So far, so good, but now I'm waiting for the side effects to kick in and/or the good effects to wear off!

libodem

(19,288 posts)
7. my friend has that
Sat Jul 7, 2012, 01:26 PM
Jul 2012

My ex had lupus. She works hard as hell but you can see the exhaustion in her face.

Warpy

(113,130 posts)
8. The good effects don't wear off
Sat Jul 7, 2012, 06:01 PM
Jul 2012

and some of the bad effects like the emotional roller coaster will decrease over time.

Sjogren's can and does kill, usually through pulmonary fibrosis or kidney disease. However, it rarely follows a rapid and fulminating course like the worst lupus sometimes can.

hedgehog

(36,286 posts)
4. Thanks for letting me vent- it helps to get my thoughts in order.
Sat Jul 7, 2012, 01:16 PM
Jul 2012

Right now I'm going to get off my ass and do some cleaning. Later!

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