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William769

(55,871 posts)
Tue Jan 17, 2012, 12:11 PM Jan 2012

Anyone here have a vitamin D deficiency?

I have been battling this problem for awhile now and my Doctor told me it because of my HIV. They are doing research on it to find out why this is happening to HIV positive people but nothing conclusive yet. I am even taking a prescription vitamin D to no avail.

Anyone else experiencing this?

11 replies = new reply since forum marked as read
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Anyone here have a vitamin D deficiency? (Original Post) William769 Jan 2012 OP
Frequently unchecked in many auto-immune disorders w8liftinglady Jan 2012 #1
I do. DevonRex Mar 2012 #2
very long term hinv survivor here HillbillyBob Mar 2012 #3
We are here for you. William769 Mar 2012 #4
I'm negative BUT I do have stage 4 cancer and found out last month that my level Ecumenist Mar 2012 #5
I wish you the best of luck. William769 Jun 2012 #9
I do-- BigDemVoter Jun 2012 #6
I had it. Neoma Jun 2012 #7
The problem here is I get plenty of sunshine William769 Jun 2012 #8
I can relate. Neoma Jun 2012 #10
Spam deleted by tjwmason (MIR Team) DruryHerbert Jun 2012 #11

w8liftinglady

(23,278 posts)
1. Frequently unchecked in many auto-immune disorders
Tue Jan 17, 2012, 08:34 PM
Jan 2012

I had D deficiency with Lupus. Also required 2 replacement therapies with prescription vit d.Glad you're on top of it.Don't let them pull the "replace it with diet" bullshit.

DevonRex

(22,541 posts)
2. I do.
Thu Mar 1, 2012, 12:19 PM
Mar 2012

I don't have HIV. But I do have CVID, common variable immune deficiency. It's not common, it's just a catchall diagnosis that describes 6 different types of rare to extremely rare immune deficiencies.

So I'm thinking there might be a link somewhere. I take Rx vitamin D and the numbers have improved a bit. Remarkably, I can actually feel the difference when I forget to take it for a couple of days. I have more energy when I'm on it. Not a lot, but certainly more than I had before.

I'm really bad about taking medications, so I've certainly had enough experience on it and off of it. I do inject my Hizentra every day, though. Can't forget that.

HillbillyBob

(3,208 posts)
3. very long term hinv survivor here
Thu Mar 1, 2012, 10:26 PM
Mar 2012

I was diagnosed with diabetes and very low (9) last week. I am start star a prescription tomorrow.

Ecumenist

(6,086 posts)
5. I'm negative BUT I do have stage 4 cancer and found out last month that my level
Wed Mar 14, 2012, 01:25 PM
Mar 2012

was REAL low, (4). In the process of taken Rx D3 and hoping that my counts will be up at testing in June.

Neoma

(10,039 posts)
7. I had it.
Tue Jun 5, 2012, 12:53 PM
Jun 2012

I'm not HIV/Aids positive, but I think this deficiency is common.

Working in an office with no sunlight, or if anyone is like me, using their house as a cave to play videogames or to read in, you're just gonna have problems.

William769

(55,871 posts)
8. The problem here is I get plenty of sunshine
Tue Jun 5, 2012, 12:58 PM
Jun 2012

I do live in the sunshine State.

The problem here is HIV medicine is causing our deficiency. We are on this medicine for life, it's not like we can correct this problem with a easy solution of just going outside.

My condition has gotten to the point I am going in for weekly shots to try to boost my vitamin D.

Neoma

(10,039 posts)
10. I can relate.
Tue Jun 5, 2012, 04:02 PM
Jun 2012

Except with me, it's B-12 shots because my digestive system doesn't absorb it, and bipolar II/endometriosis meds.

I doubt there will ever be a "cure" for bipolar. But for HIV/Aids, I can see it happening someday.

You know the speech. "Well, we can't cure it, but we can manage it."

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