Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

icymist

(15,888 posts)
Mon Feb 25, 2019, 07:08 PM Feb 2019

Hi everyone, I have decided to post these here since I love this group most.

My Heart Condition
An update, and for those just finding out, what's going on with me.

Greetings friends,

For those who didn't know about my condition, a slight heart murmur detected back in September of 2018 has led to many tests and meetings with cardiac specialists which brought about the discovery of a problematic heart valve. It needs to be replaced and I have chosen Virginia Mason hospital in Seattle to have this done. It has also been determined that I have clogged arteries as well and they are to be addressed at a later date. Due to my life long dealings with birth defects (a lot of you don't know I have these) special considerations have been met for the surgeries with my cardiac team. For those who are unaware of my birth defects; I was born with IA/ARM which stands for imperforate anus /  anorectal malformation which, despite having many surgeries throughout my childhood, still give me problems. Because of the later it has been decided that the best approach to replacing the heart valve is a transcatheter aortic valve replacement.
Transcatheter aortic valve replacement (TAVR) - Mayo Clinic

After a lengthy period of time for this surgery being held up by my dentist, I finally have been approved to move forward. This kind of operation is usually performed on older folks, 70 – 80 years of age. I am 60 and will be one of the first to get this kind of surgery. The type of valve I will be getting is a biological one and length of life expectancy is unknown with younger people. (I sure don't feel like a 'younger person', but c'est la vie!) There will be a low risk of a stroke and a 10% chance of winding up with a pacemaker.

On March 15 I will be going to my pre-op visits with the cardiac nurse, the anesthesiologist, and to get labs done. The surgery will happen on April 2. I may be home the next day if I can recover fast enough. If not then 24 to 72 hours later. The clogged arteries will be addressed sometime after that. And there you all have the saga of the heart surgery! I will be posting more updates when I know more.

links of interest:
https://www.google.com/search?q=imperforate+anus&spell=1&sa=X&ved=0ahUKEwi8j9r4gNjgAhVPop4KHayfAXUQkeECCCsoAA
https://www.google.com/search?q=anorectal+malformation&spell=1&sa=X&ved=0ahUKEwiZ79OggdjgAhVCop4KHX0iB0EQkeECCCsoAA

https://www.mayoclinic.org/tests-procedures/transcatheter-aortic-valve-replacement/about/pac-20384698

7 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Hi everyone, I have decided to post these here since I love this group most. (Original Post) icymist Feb 2019 OP
I wish the the best with your surgery mercuryblues Feb 2019 #1
Love hope and positive energy for you. irisblue Feb 2019 #2
Wow...... SWBTATTReg Feb 2019 #3
May it all go really smoothly. And that you feel much better when it's done. sweetroxie Feb 2019 #4
Will be sending you good vibes on April 2 Sienna86 Feb 2019 #5
I'm so happy you posted here icymist. MontanaMama Feb 2019 #6
Dates have been changed. icymist Mar 2019 #7

SWBTATTReg

(24,085 posts)
3. Wow......
Mon Feb 25, 2019, 07:23 PM
Feb 2019

Thank you for the heads up and news of/status of your illnesses. Here wishing you and your loved ones the best of all scenarios. I'll keep you in my thoughts and will of course want an update (hopefully the best you can get). Hang in there, be strong (of course you know this already).

Wishing you a speedy and heathy recovery.

sweetroxie

(776 posts)
4. May it all go really smoothly. And that you feel much better when it's done.
Mon Feb 25, 2019, 07:34 PM
Feb 2019

I too, have heart issues: murmur, bad valve and pacemaker so I await more information about your progress with selfish interest. Be well.

MontanaMama

(24,013 posts)
6. I'm so happy you posted here icymist.
Mon Feb 25, 2019, 11:38 PM
Feb 2019

With these hurdles ahead and you have my best wishes for a positive outcome. I will light a candle in your name in my solitary circle.

Blessed be. 🌌

icymist

(15,888 posts)
7. Dates have been changed.
Sat Mar 2, 2019, 06:40 PM
Mar 2019

Everyone, the hospital changed the dates for this: New dates: April 12, 2019 will be the pre-op education, meeting with the anesthesiologist, one of the doctors, and labs. On April 16th will be the TVAR operation with a check in at 6:30am!

Latest Discussions»Alliance Forums»Ancient Wisdom and Pagan Spirituality»Hi everyone, I have decid...