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"Right To Try Woo" laws being advocated for... (Original Post) Archae May 2014 OP
This message was self-deleted by its author xocet May 2014 #1
We used medications that hadn't been through the whole song and dance Warpy May 2014 #2
Speaking as someone TZ May 2014 #3
Exactly, you're not going to get any deader if it doesn't work Warpy May 2014 #4
To be honest... LeftishBrit May 2014 #5
But... Archae May 2014 #6
I think that 'truth in advertising' laws must be enforced for any medical treatments. LeftishBrit May 2014 #7

Response to Archae (Original post)

Warpy

(113,130 posts)
2. We used medications that hadn't been through the whole song and dance
Mon May 19, 2014, 02:55 AM
May 2014

at the height of the AIDS crisis in the 80s. By the end of the 80s, prognoses had climbed from a matter of hours to a matter of months, mostly due to substances we knew only by letters and numbers.

Now that the emergency is over and patients are maintained for years on drug cocktails, we're back to doing double blind studies. We skipped them in the big teaching hospitals back in the 80s, legal or not, on patients who were facing a quick and certain death. The double blind studies proceeded outside the hospitals with patients who were infected but not yet deathly ill.

There should always be a loophole for the terminal as long as they're advised that the drug might hasten their death or prolong their lives and it was unknown which it would be.

TZ

(42,998 posts)
3. Speaking as someone
Mon May 19, 2014, 07:49 AM
May 2014

whose medication is technically off label (interferon is approved for Hep C not my illness. That is still in clinical trial stage) and had to fight the insurance company for the right to have this drug. I'm not agaisnt these laws. If you are dying, and there are no other options, why not? Sometimes you can pull off miracles that way. Look at the woman dying of cancer who was saved by the mega dose of the measles vaccine...

Warpy

(113,130 posts)
4. Exactly, you're not going to get any deader if it doesn't work
Reply to TZ (Reply #3)
Mon May 19, 2014, 02:59 PM
May 2014

I should add, also, that off label and unapproved drugs ARE NOT WOO.

Shit that doesn't have a hope of doing anything like putting crystals on you for 10 minutes is woo.

LeftishBrit

(41,303 posts)
5. To be honest...
Tue May 20, 2014, 04:14 AM
May 2014

if standard medicine has no more to offer a person, I see no harm, and the possibility of good, in their trying nonstandard approaches, so long as they are made fully aware of the risks of doing so.

Archae

(46,798 posts)
6. But...
Tue May 20, 2014, 12:31 PM
May 2014

This will open the door to any and every snake-oil salesman like those guys just thrown in jail for "stem cell treatments" that were absolutely bogus.

"Oh but if they are dying, let them try it!"

So then they have the "right" to lose their life savings also to quacks?

LeftishBrit

(41,303 posts)
7. I think that 'truth in advertising' laws must be enforced for any medical treatments.
Tue May 20, 2014, 01:18 PM
May 2014

Terminally ill and other desperate people often waste their money on snake oil remedies now. They might do so less if they had the option of receiving treatments that have at least some empirical validation, even if not completed.

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