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Bereavement

ChazII

(6,321 posts) Tue May 17, 2022, 11:45 AM May 2022

International Neurofibromatosis Awareness Day - May 17

Both my son and I had (and I still have NF1) Neurofibromatosis Type 1. This is my second time celebrating or spreading awareness of Neurofibromatosis with out my son. We light the house in the colors for NF. If you don't know about this disorder remember Google is your friend. Or even better visit Children's Tumor Foundation ctf.org

We did have several members here at DU who have this genetic disorder. I am posting this in bereavement manily because I am missing my son today. He passed 3/6/20 from a glioblastoma brain tumor.