A different kind of parental alienation part 1
The story is very sad, and happened just in the last month.
My daughter, who is mildly developmentally delayed, has lived with me her whole life. We get along well. In her teens, when we learned she also had a seizure disorder, I fought for her disability status and SSI (realizing that she must never be without health coverage and opportunity for benefits should something happen to me. Her father, a diagnosed narcissist, refused to support her after she was 18. Her siblings provided no support, dealing with their own families. And so, we obtained her disability designation with the help of our U.S. Senator, and qualified her for health coverage and SSDI. She was protected, and I was digilent in maintaining those postential benefits.
We shared the costs of daily iiving. I was not able to work a traditional job (as an editor in a high-profile non-profit in D.C., I had been able to take her to work with me). And so I worked eBay, buying and selling vintage and antique paper items. Eventually, when she was able to collect Social Security on my work credits, we shared the apartment rental costs, half and half. All well and good -- her food costs were significantly higher than mine..LOL. We had some lean times - and her brothers and sister (adults then) did not feel obligated to lend a hand.
We lived in harmony for thirty years. Anyone who has cared for a DD family member knows that it can be a lonely life. We indulged her hobbies, didn't go out much, saw family occasionally. were together most of the time. She was able to go to the grocery store by herself on the city bus.
Fast forward to last month.
I was sick. In need of a pacemaker, in need of some vascular surgery. Those were scheduled, but then two wounds on my feet from podiatry became infected and I was sick with that on top of the pacemaker and the surgery. Yikes. THEN, in hospital for evaluation of the foot wounds, I had an allergic reaction to the contrast dye in a CT scan. (A reaction like that can kill ya!)
I ended up being sent to a skilled nursing facility due to the foot trouble. For two weeks. During that time, older daughter was highly solicitous and graceful and her sister, my disabled daughter, stayed with her. It had all been a traumatic time for Jennifer. Mom sick, yada yada.
Older daughter C began gaslighing me! What the hell? What? Constantly telling me how sick I am and how I am forgetting things and how I will never be able to live in our apartment, buying me a heavy duty walker and several dozen diapers and other items that were not indicated and never would be needed for a long time. Oh, and also a huge shower bench delivered.
Meanwhile, in the facility, I was scolded by the physical therapist for running in the halls, passing all the tests they put before me (Yes, I can sort my pills) and (Yes, I can climb a flight of stairs). There was nothing wrong with me after a few days of rest for my sore feet.
It was at this time, when we were told that I could be discharged soon...... to be continued after I feed the cat, sorry.
Grasswire2
(13,708 posts)...Jennifer had always resisted being labeled as special needs of any kind. No programs. She wanted to live in her own way, no case worker or ward of the state or any of that. And I honored that, all of her life. When she was small, my aunt had suggested that I have her institutionalized. Nope. Could never, ever consider that.
....................................
Back to the story..... So I was about to be discharged from the facility. I received a text message from Jennifer saying "I can't live with you any more I want some independents (sic)" Okay, I replied, "Let's talk about this as a family very soon."
I was amenable to the idea of transitioning Jennifer to care of her sister, 200 miles away. That had always been the eventual plan for her and for me.
But something else was afoot. I was informed by the physical therapist that C had told the staff at the facility that Jennifer would be moving out of our apartment before I would be home. They had been informed a week before. No one had told me.
The gaslighting increased. And then a msg from Jennifer saying "Mom I can't live with you anymore. I need independents (sic)" "Okay" I wrote back "Let's talk as a family when I get out."
Next came the "care committee" meeting where staff and family would talk about my future. (Honestly, who granted them that authority??) When Jennifer and C showed up, Jennifer's face was stiff with grief. She said to me "I'm mad at you." Dumbfounded, I asked why. "C says you stole my life. She says you kept me from living my life" And then the meeting started. I was struck nearly speechless.
C. kept bringing up reasons why I should not go home. "Who is going to help you down the stairs and into the apartment?" "How will you manage the things that need to be done?" Yada yada yad.
What the hell???!!
I was firm. I'm going home. Now. I'm going home. I'm going home. End of discussion. End of discussion. A taxi will come and take me home.
C kept arguing with me. The social worker said "How about you leave in three hours so we can do the paper work.
And WHEN I GOT HOME I KNEW WHY C. was in such a hurry.
She had thought they had the weekend to get Jennifer's stuff out of there. But they had less than three hours.
The place was ransacked when I got home. A disaster in Jennifer's bedroom as they grabbed things to go. Totally ransacked. They forgot her coats and good shoes in the haste.
And before any reaction could be voiced, C. cut off all communication of any kind. This is known as "emotional cutoff" -- an outdated therapy from the 1960s.
It gets worse.....
Grasswire2
(13,708 posts)By this time, my son was also whipped into a frenzy by C, accusing me ot pursuing Jennifer's benefits and working to protect them because I wanted to "live off her disability"
A preposterous notion insulting to every family who has to fight the system to get and maintain benefits.
So, here we are.
I tried to send Jennifer a box of candy for her birthday next week. C. refused to accept the amazon delivery.
Parent alienation of special needs person, by sibling.
Yes, I realize that C. is "troubled" And she is an ordained Unitarian minister. Her siblings called her "Hitler" as children.
I wish I knew how to move forward. I know that Jennifer has now been fully indoctrinated with the product of C's imagination.
Thanks for listening.
Delphinus
(12,140 posts)I'm so sorry to hear this.
It's scary to think your daughter C is in charge of daughter J - J may find out the hard way how demented C seems to be.
AND it's hugely horrible and scary that C is a Unitarian minister. You might be able to alert the UUA about her actions in the district she serves. I would hate to be going to that church.
Sadness for all involved here.
I do hope you are home and are able to cope well.
slightlv
(4,325 posts)Our situation is so very different... but I feel for you. We lived with an uncle (about 10 years older than me) who had german measles as a young child and was left mentally deficient. When the institutions closed down during Reagan's realm, he was sent home after being kicked out of a halfway house for being unmanageable and violent. His body grew, but he had the mental capacity of about an 8 year old, maybe. And everything was immediate gratification. My mother grew up in this environment and was emotionally stunted and harmed for the rest of her life, and the harm was passed down the generations through us, her children... both directly and indirectly.
At one point during all this, he "discovered" sex and thought he'd try it out on me. I was about 11 years old. I fought him off, and told my grandmother what happened. She convinced me to keep it a secret and she'd talk to him and keep him from doing anything like that again. To this day, I've never told anyone (except here, now).
When he was finally accepted into a group home when he was in his late 30's, what he couldn't grab of my late great-grandfather's, he smashed. This was furniture, etc., that my great grandfather had made and was very special to us. Luckily, I had managed to get hold of a few things like the grandfather's clock he made and the hope chest he'd made me when I was still a baby. But other irreplaceable items were smashed to bits. My grandma was beside herself, my mom was in tears of grief and anger. And my uncle seemed quite pleased with himself. He announced to everyone he was getting married (!).
My mom is in a memory care home today. I hate it. I have two chronic illnesses that keep me from being able to care for her, and the pent up anger and violence from those early days comes too easily to her in her dementia. I can't cope with it, and she needs professional care, no matter how much I wanted her to spend her last days with me.
I have a supportive family. My sister and I are united around our mom. Sis is too young to know much of anything about our uncle. Brother doesn't really understand or care. He lives in his own world. Interestingly enough, he is the only Republican in the family (LOL). Kinda fits, doesn't it? But he doesn't make noise about anything we two sisters plan, as long as we keep him in the loop. But for me, the psychologist in the family, it's hard not to see the dynamics of those early days still playing out in these, the latter days of my mom and how they still impact our family.
My heart goes out to you. Family is not easy. We can choose our friends, but not our family. May the Universe give you the love, grace and strength to handle that with which you are presented, my friend. And may your daughter come to realize who truly has had her heart and back this whole time. But do realize righteous hitlers are hard to overcome. We have had them in our family, too, in the manner of baptist preachers. So I do know of what I speak. But I also know their influence CAN be seen through, eventually. Hang in there... but always remember to be good to yourself!