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Can anyone tell me first hand about medical for MS (Original Post) stopwastingmymoney Apr 2015 OP
Cannabanoids (CBD) would be the best thing to start with MS. Taylorz Apr 2015 #1
i have a sister who has a very advanced case. she has battled it for many years CentralMass Apr 2015 #2
It did not fit with my conditions. Downwinder Apr 2015 #3
A friends brother AgingAmerican Apr 2015 #4
Yes CountAllVotes Apr 2015 #5
As mentioned below ... CountAllVotes May 2015 #6
That's wonderful news! antiquie May 2015 #7
It was a huge hassle CountAllVotes May 2015 #8
yep. it's a goddam miracle cure for my MS symptoms 0rganism May 2015 #9
From My Perspective TheHardWay May 2015 #10
Thank you to everyone for your responses stopwastingmymoney May 2015 #11
 

Taylorz

(53 posts)
1. Cannabanoids (CBD) would be the best thing to start with MS.
Sun Apr 19, 2015, 10:16 PM
Apr 2015

I also have a friend who's MS, and has done well on CBD oils.

CentralMass

(15,583 posts)
2. i have a sister who has a very advanced case. she has battled it for many years
Sun Apr 19, 2015, 10:53 PM
Apr 2015

While from what I read the disease affects people differently. I know my sister suffers from terrible spasm's that are brutally painful . I've read that some MS suffers get relief from the spasms with mm. In her advance condition, medication affect her differently.
To my knowledge she as not tried mm

Downwinder

(12,869 posts)
3. It did not fit with my conditions.
Sun Apr 19, 2015, 11:53 PM
Apr 2015

As you say, MS is different with different people. Nice thing about MJ it doesn't hurt to try. Worst thing that can happen is to put you back where you don't want to be. But, MJ wears off, MS doesn't.

CountAllVotes

(21,095 posts)
5. Yes
Mon Apr 20, 2015, 12:01 PM
Apr 2015

I have MS and I WAS using it to help with my many symptoms, including severe chronic pain.

Note that word WAS.

I had to quit because the doctor I go to for primary care is against the use of MMJ so I had to stop being this doctor is now drug testing their patients with chronic pain problems that require legal medication for it.

This truly sucks for me as it gave me some comfort with this very painful progressive disease that I have been dealing with for close to 40 years now.

There are so many people abusing legal and illegal drugs that it has led to this for the chronically ill people like myself.

People say, "Go to another doctor."

Easier said than done as NO DOCTOR wants the likes of me, a chronically ill patient with a disease that has no cure that requires pain medications in order to live some sort of a life. I truly believe it had been keeping me out of a wheelchair but I guess I better start loving one because I am getting worse quickly since I had to stop.

I was hoping to start using the cbds but that is now out for me now as it will cause one to test positive for MJ.

More about this here:

http://www.projectcbd.org/conditions/multiple-sclerosis-2/

http://www.projectcbd.org/conditions/neuropathic-pain-2/

Happy 420 out there to the happy healthy people using this substance from a person that this was supposed to be all about and for.

The likes of ME has been used very well so that YOU can have it!



CountAllVotes

(21,095 posts)
6. As mentioned below ...
Sun May 3, 2015, 01:47 AM
May 2015

Yes it helps with many of my symptoms, esp. that of choking on food. The doctor wanted to run some sort of a long tube down my throat and I told said doctor no! After I quit using MMJ for the M.S. I realized that the MMJ was stopping this from occurring! I kid you not! It was so frightening as I have almost choked to death several times as the swallowing reflux does not work well any longer as well as having muscle spasms in the throat it seems.

Luckily, since I posted a few weeks ago, I have some how managed to find a new primary care physician to take me as their patient! YES I have!!!

I am so happy now as I no longer have to worry about being drug tested and I can eat again and I do not have to go back to the Nazi doctor with the drug testing in place the second you walk through the door! .When I posted below, I'd lost about 10 lbs. in two weeks as I could no longer swallow/eat very well and this problem is non-existent when using MMJ.

Was at a support group today and there were others there with M.S. and they all use MMJ and they are of all ages both young and old.

Seems this valuable medicine helps a lot of very sick people that have M.S. other than just myself!





 

antiquie

(4,299 posts)
7. That's wonderful news!
Sun May 3, 2015, 08:30 AM
May 2015

So sorry you had to battle the system just to use nature's medicine.

CountAllVotes

(21,095 posts)
8. It was a huge hassle
Sun May 3, 2015, 09:32 AM
May 2015

Every place I called either hung-up on me or told me NO, they did NOT want a sick person as their patient (what is the point of medicine dare I ask?).

Then I heard of this doctor that is quite a long drive for me to go to but I received a call back within 2 hrs. and an offer if an appointment later that same week!

So, even though it is a bit of a drive (about 90 miles R/T), at least I no longer have to live under the auspices of the other doctor I had been going to and no, I don't have to go back in one month or two or three, just when I have a need to go which makes sense to me.

I found out my husband's doctor is retiring soon and he'll be needing a new doctor too and I'll likely take him to this same doctor as he'd mentioned that he knew my husband's doctor is going to retire within the next couple of months so I've got this new doctor lined up for him too!

I'm so glad I found the new doctor. There is a severe shortage where I live. They now drug test people that go into an open door clinic no matter why if you can believe that! The lady from the M.S. support group was telling that they drug tested her husband when he went for treatment of a bladder infection if you can believe that! Yikes indeed and you really do NOT want this on your record!



0rganism

(24,732 posts)
9. yep. it's a goddam miracle cure for my MS symptoms
Thu May 14, 2015, 06:17 PM
May 2015

diagnosed with MS in 2011. still in the RRMS stage today.
first time i tried MMJ when having an MS attack, it was like a wet blanket of misery lifted off my entire body and i felt alive again. When using MMJ, my muscles seem to stabilize, my balance improves, and my attitude gets a lot better. your acquaintance will likely find that MMJ helps in several ways, although i've heard that results vary greatly from patient to patient.

i'd caution your acquaintance not to rely solely on MMJ though -- i doubt very much it addresses the underlying immune system problem in any way. i'm using Copaxone to address the underlying causes, because my insurance covers most of the cost. there are a number of new and very expensive drugs that can help; i'd recommend your acquaintance familiarize him/herself with them as well.

TheHardWay

(6 posts)
10. From My Perspective
Thu May 14, 2015, 11:12 PM
May 2015

I have MS and I currently use MMJ to relieve a range of symptoms from the mind not shutting down at night, to a constant tremor, to loosening the stiffness that stems from a scared nervous system (have you ever been to the movie theater? If you've been into a movie it is possible your body may have been sitting perfectly still for a period of time that, when you go to stand you may need to take a stretch... I live in this 'stretched' state most of the time).

To be honest, while having the symptoms of MS are never gone - nothing is going to reverse the damage to my system, the MMJ has a valuable benefit for me in that for a moment my body is not reacting to the surroundings as drastically as it does; if it is cold out, I can take some meds and be able to stand the cold a little less stiffly than when not medicated.

So, really the only thing MMJ does for me is that a temporarily buffer of the "barbed-wire-in-my-skin" that is there all the time, 24 hours a day, and never goes away nor will it get any better...

It is a slight betterment of my life I cannot explain completely. And sadly, this only feels like a dying man's final days and he can only stand it if he has the meds from the doctors, however in this case it is a natural substance rather than a highly refines and highly concentrated man-made substances. It's a personal choice and I liken it to a woman's right to choose what goes into or out of their bodies. No man would for a moment accept government telling us how to use our penises... why is the vagina any different? (I don't really care to hear the claims...)

There is many many sights with plenty of websites out there dedicated to the MMJ, if you wanted to search for something called Granny Storm Crow’s List, it has too many papers for any on person to thoroughly review, but because it is a searchable document it is possible to really find good detail on specific information... provided you are technically knowledgeable in the medical fields noted within the doc.

In my view, there really will not be any real documentation until research is able to be completed in the United Sates, but for some reason the research needed is only trickling out to the public, and unfortunately for me I lack the PhD to do the research I'd like to see done myself.

So, I thank the process, California and an earlier version of myself (In 94/95 I was an advocate and collected signatures for the Prop 215 Compassionate Use Initiative (which was not perfect at all, but makes it possible for me to express my right to have the product that I have while expressly retaining all other rights afforded me by the United States Constitution. I say I thank my fellow man for making this available, however it is not the happy go lucky road that everyone might think. I am no longer getting "high" as I did even 10 years ago - it used to be I'd take the first hit after going without for a while and immediately feel the effects of the THC and CBD content of my supplied flower. These days, I am trying to keep my THC/CBD levels at a base in order to keep the barbed-wire and muscle-stiffness feelings at bay while I try to conduct something one would call a decent life.

Unfortunately for me, I started out with somewhat limited room in my brain for the differences between the differing strains that are available. I do know that there is a difference between Indica and Sativa strains. Indica would be the strain that used to leave me and my friends in the couches for hours to recover enough to move, while the Sativa is one that I often associate with a night out under the stars with friends wondering out loud the questions of the universe. It is that curious, inquisitive, creative, thought-provoking kind of high that might lead one to a great discovery.

For me, these days, the difference would only be in the sensation of my eyes getting droopy under the indica while normal under sativa.

Hope this note helps. If you have any questions and if this thread delivery system works I can answer what I can.

Until then Cheers,
Jingy

I just remembered this site, which is a new site dedicated to making the latest research available to the public
http://www.theanswerpage.com/?utm_source=Email&utm_medium=QofDEmail&utm_content=Homelink&utm_campaign=Home

stopwastingmymoney

(2,158 posts)
11. Thank you to everyone for your responses
Fri May 15, 2015, 12:32 AM
May 2015

And to Jingy especially for these sources

I'm sorry you're so ill Jingy and welcome to DU, I hope you enjoy it

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