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walkingman

(9,166 posts)

2. Wishing good luck with your health going forward.

Reply to Xipe Totec (Original post)

Wed Apr 2, 2025, 05:16 PM

Apr 2

Impressed that you were able to have such a rare disease diagnosed. You much have some very good healthcare available in your area. Hope you are easily manageable symptoms going forward.

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Xipe Totec

8 replies

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Highlight:

I have Erdheim-Chester disease. If you've never heard of it, I'm not surprised [View all] Xipe Totec Apr 2 OP

That's a BFD canetoad Apr 2 #1

Wishing good luck with your health going forward. walkingman Apr 2 #2

You raise a good point Xipe Totec Apr 2 #4

I've only heard it mentioned at a continuing education autoimmune disease seminar in recent years... hlthe2b Apr 2 #3

I'm glad you are in good hands medically. LoisB Apr 2 #5

Im so happy that you got a gutsy doctor, a diminishing breed !!! Karadeniz Apr 2 #6

Oh my dear Xipe! CaliforniaPeggy Apr 2 #7

Woah, super rare! May this condition be kept in check w a good doc, and good meds through a hopefully long life. electric_blue68 Apr 2 #8