General Discussion
Showing Original Post only (View all)My cancer update [View all]
Hello friends, a fair number of you have asked in my posts how I was doing, sorry I never responded
but I had no good news to report and I still don't.
Bottom line my local medical complex/hospital is killing me is how I feel. I went to "HM" January 2nd
with a small lump below and behind my right ear, within 10 days we knew it was cancerous and to this
day I have received no chemo or radiation treatment from them. It was an enlarged nymph node and is
is growing around the jugular vein. Everything with HM is scheduled 2 weeks away, test for ABC 2 weeks
away, appointment with doctor to talk about ABC test results 2 weeks away.etc, etc
So HM declares "we have no surgeon willing to do your surgery". They set me up an appointment with
KU cancer center in Kansas City, drive 4 hours to get there just to find out again "we have no surgeon
willing to do your surgery". Wait another 2 weeks to meet my 3rd chemo doctor in 5 months at HM.
"We got you an appointment with UCH in Denver with a ENT surgeon"
Yesterday drove 5 hours to UCH in Denver, the surgeon has preformed the type of surgery I need
several times successfully but mine is the worst he's ever seen. If he did surgery today because it's
grown so large I'd lose most of the right side of my neck and some of my face. Plus it's starting to
grow into my vocal cords and if it has, they'll remove them also and leave me with a hole in my lower
neck to breath. If I had found this surgeon in January I'd be in great shape today.
So the UCH Doctor's game plan is send me back to HM and have them start me on some
autoimmune therapy to see if we can reduce the size of this tumor to where he feels comfortable
doing surgery, I'd sure hate to lose my vocal cords or to breath through a hole.
Called HM first thing this morning an informed them what Denver wants done right away, 2 new tests
and autoimmune therapy started. Last time I called HM cancer center they took 2 days to call me back,
if I don't hear back from them today I'll be sitting in their office when they open at 8:00.
I really do appreciate everyone's well wishes.
