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KS Toronado

(21,058 posts)
Thu Jun 12, 2025, 11:33 AM Jun 12

My cancer update [View all]

Hello friends, a fair number of you have asked in my posts how I was doing, sorry I never responded
but I had no good news to report and I still don't.

Bottom line my local medical complex/hospital is killing me is how I feel. I went to "HM" January 2nd
with a small lump below and behind my right ear, within 10 days we knew it was cancerous and to this
day I have received no chemo or radiation treatment from them. It was an enlarged nymph node and is
is growing around the jugular vein. Everything with HM is scheduled 2 weeks away, test for ABC 2 weeks
away, appointment with doctor to talk about ABC test results 2 weeks away.etc, etc

So HM declares "we have no surgeon willing to do your surgery". They set me up an appointment with
KU cancer center in Kansas City, drive 4 hours to get there just to find out again "we have no surgeon
willing to do your surgery". Wait another 2 weeks to meet my 3rd chemo doctor in 5 months at HM.
"We got you an appointment with UCH in Denver with a ENT surgeon"

Yesterday drove 5 hours to UCH in Denver, the surgeon has preformed the type of surgery I need
several times successfully but mine is the worst he's ever seen. If he did surgery today because it's
grown so large I'd lose most of the right side of my neck and some of my face. Plus it's starting to
grow into my vocal cords and if it has, they'll remove them also and leave me with a hole in my lower
neck to breath. If I had found this surgeon in January I'd be in great shape today.

So the UCH Doctor's game plan is send me back to HM and have them start me on some
autoimmune therapy to see if we can reduce the size of this tumor to where he feels comfortable
doing surgery, I'd sure hate to lose my vocal cords or to breath through a hole.

Called HM first thing this morning an informed them what Denver wants done right away, 2 new tests
and autoimmune therapy started. Last time I called HM cancer center they took 2 days to call me back,
if I don't hear back from them today I'll be sitting in their office when they open at 8:00.

I really do appreciate everyone's well wishes.

83 replies = new reply since forum marked as read
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My cancer update [View all] KS Toronado Jun 12 OP
I am so very sorry. StarryNite Jun 12 #1
+1000 hamsterjill Jun 12 #21
I am so sorry LetMyPeopleVote Jun 12 #2
Oh, man Lulu KC Jun 12 #3
My prayers & wished are with you. William769 Jun 12 #4
I am so sorry. This should not have happened to you. Peace and strength to you and yours. mucholderthandirt Jun 12 #5
All best wishes and that hope turns into a solution for your health. Passages Jun 12 #6
Sending all my good vibes to you, KS. mobeau69 Jun 12 #7
Gutted to hear this m8, all my wishes that you quickly find a way to unlock the process & get on the road to recovery. Celerity Jun 12 #8
Feel for you! Good luck! Canada Kid Jun 12 #9
I am very sorry. It does seem that KU offers Car T cell therapy for lymphoma. NNadir Jun 12 #10
Sending out good vibes for you. blogslug Jun 12 #11
I'm sad to hear of your lack of quality care. TexLaProgressive Jun 12 #12
They have access through "MyChart" mercuryblues Jun 12 #57
Scary stuff. You need sme love. pandr32 Jun 12 #13
Sending healing vibes Lifeafter70 Jun 12 #14
Sweet jesus. That is awful. 1WorldHope Jun 12 #15
I'm hoping they can reduce the tumor for you nuxvomica Jun 12 #16
Wishing only the best for you. So sorry to hear Bev54 Jun 12 #17
Hope it works out malaise Jun 12 #18
I am so very sorry, KS. I wish I could do something for you, brer cat Jun 12 #19
I am so sorry. I do hope it can be shrunken so the surgery can be done. Don't lose hope. LoisB Jun 12 #20
What horror. Hoping for the best. question everything Jun 12 #22
I am so very sorry. 🙏🙏🙏 LiberalLoner Jun 12 #23
So sorry you are dealing with this. AltairIV Jun 12 #24
I pray the autoimmune therapy works. Your post brought tears to my eyes. I am so sorry you are going through this. Doodley Jun 12 #25
you should never have had to go through all that NJCher Jun 12 #26
(((HUGS))) BumRushDaShow Jun 12 #27
I've fired a lot of doctors. The U of M docs are the worse. multigraincracker Jun 12 #29
I'm sorry to hear how badly you have been treated. redwitch Jun 12 #28
GOOD lord that's brutal KS.... democratsruletheday Jun 12 #30
Crap, KS 70sEraVet Jun 12 #31
What discouraging news, IF ONLY, your issue had been addressed in January. Fla Dem Jun 12 #32
OMG, what a horror story you're living. I feel so sad for you. They keep telling us we have the best Vinca Jun 12 #33
Prayers and well-wishes. Tommy Carcetti Jun 12 #34
A note to everyone. I recently fought the cancer battle. I won because we caught it early. flashman13 Jun 12 #35
I am so sorry you are going through this. MIButterfly Jun 12 #36
Cancer Is Truly Awful, But Just As Bad Is Being Treated As Disposable FrankTC Jun 12 #37
... Solly Mack Jun 12 #38
We're in a similar situation, chiefly due to Kansas. ChazInAz Jun 12 #39
Oh man, so sorry. wtf is our medical industry doing?!?! This is insane. Delay delay delay. We're all really hoping Exp Jun 12 #40
Immune therapy has worked miracles in my ohana, mahina Jun 12 #41
Sending you love and lots of hugs, KS. sheshe2 Jun 12 #42
I am soooooooooooooo sorry KS Toronado a kennedy Jun 12 #43
You probably know this but M.D. Anderson in Houston is one of the top cancer hospitals. mobeau69 Jun 12 #44
I know what you are going thru Nigrum Cattus Jun 12 #45
hugs, heart and hope stillcool Jun 12 #46
..... Spazito Jun 12 #47
I wish you all the best, Amigo JoseBalow Jun 12 #48
Sending healing vibes and hope. BootinUp Jun 12 #49
I'm so sorry. The delays are impossible. I hope the treatments live love laugh Jun 12 #50
You deserve so much better. SleeplessinSoCal Jun 12 #51
Healing vibes on the way yo you, KS! SheltieLover Jun 12 #52
So sorry, KST. ❤️💔❤️ littlemissmartypants Jun 12 #53
Holding you in my thoughts dear KS. MLAA Jun 12 #54
I'm So Sorry, KS, you have to go through Cha Jun 12 #55
I'm so sorry KS Tornonado. Diamond_Dog Jun 12 #56
(((((BIG HUG))))) proud patriot Jun 12 #58
My heart breaks for you, truly! NCgayguy Jun 12 #59
Don't lose hope! Staph Jun 12 #60
I am so very sorry that you have had to endure all this Mountain Mule Jun 12 #61
Has anyone spoken to you about high dose radiation therapy, SBRT? pnwmom Jun 12 #62
This is terrible. murielm99 Jun 12 #63
Holding you in love and light. All possible healiing vibes sent your way. niyad Jun 12 #64
I'm so sorry, KS Toronado. You've really been let down by HM. Thank God you have seen the highplainsdem Jun 12 #65
Sarcoma? Ms. Toad Jun 12 #66
Any way you can get to another country? stollen Jun 12 #67
This is just institutionalized cruelty. I hate that this is happening to you. DFW Jun 12 #68
What kind of immunotherapy? EndlessWire Jun 12 #69
This is So Horrible! I Hope Somehow things will turn around for you into a Sucessful Outcome! electric_blue68 Jun 12 #70
Bloch Cancer Center at KU was good to me. xmas74 Jun 13 #71
Best wishes KS canetoad Jun 13 #72
Thanks so much for checking in, my friend. That can't have been easy, but as you can tell, your fellow DUers care Rhiannon12866 Jun 13 #73
Sending you lots of Goddessartist Jun 13 #74
Many many healing thoughts, prayers and energies to you KS 💚 Clouds Passing Jun 13 #75
I'm sorry that the drs let you down Marthe48 Jun 13 #76
big warm hugs et tu Jun 13 #77
Peace and healing to you, friend... Trueblue Texan Jun 13 #78
So sorry DownriverDem Jun 13 #79
What a nightmare, I am so sorry. barbtries Jun 13 #80
My wife and I are familiar with cancer treatments at both KU and CU. Trust_Reality Jun 13 #81
Let me know when you come back to Denver Nittersing Jun 13 #82
So sorry to hear that KelleyKramer Jun 13 #83
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