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"I Began To Suffer Expressive Aphasia Just After My Wife Died in January" [View all]
- I want to say "Hello", while I can still speak.
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- Daily Kos, March 31, 2022.
Brendas loss, after 51+ years of marriage, left me traumatized; some of my grief, Im realizing, wont leave me ever. But, what I never saw coming, was cognitive decline coming for me so soon, no less, in the guise of the latest, trending disease, aphasia, which I shall henceforth call Bruce Willis Disease.
Im happy to report that episodes of complete inability to form speech havent been frequent. But, the problem has felt progressively worse in duration and frequency, all the same. Though complete blocks have been short, during a complete block, I can neither speak, write nor type words, nor compose a sentence nor a phrase. Yet, I can still understand speech and language from others or in programs. But speech is AWOL. I cant even say the words mentally. Its the oddest sensation, one totally new to me. But, most of the time Im still able to express speech fluently in my native English. And its not an on and off thing. Im noticing more slurring and stumbling with words. But Im also becoming sensitive to foods. activities and behaviors that rile up the problem.
Although my daughters and I first experienced this disorder in January, we didnt obtain a diagnosis until earlier in March while I was traveling with my older daughter on a Caribbean cruise. I collapsed at dinner one night and became aware of my surroundings again in the ships medical facility under the care of a Board Certified emergency physician. Two days later, my shore excursion to Cozumel, Mexico, was a taxi to a hospital visit, all pre-arranged by medical staff on the ship, getting a cat scan, a carotid artery ultrasound plus an exam and consultation with a neurological physician, instead of the previously scheduled seaside chocolate and tequila workshop.
Ive had lots of tests in the weeks since then and seen lots of doctors, including my own. Everyone defers to the neurology practice that cant see me until July. Im already booked for another cruise in June, in Greece, with both of my daughters. I doubt that anyone will be too upset with a guy at dinner who is sometimes quiet. After then, I intend to do what ever can be done to arrest or slow my own brains attack on what I aways thought was part of the best of me, my power of expression. ~
Comments,
https://www.dailykos.com/stories/2022/3/31/2089364/-I-began-to-Suffer-Expressive-Aphasia-Just-After-my-Wife-Died-in-January
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- President of the National Aphasia Association says aphasia can be connected to cognitive decline, Daily Kos, March 31,
.. The National Aphasia Association (NAA) describes the condition as an acquired communication disorder that impairs a persons ability to process language, and the persons ability to speak and understand others. It does not affect someones intelligence. NAA stated on its website that the organization was saddened to hear of Bruce Willis recent diagnosis of aphasia, adding that we understand the impact of this diagnosis.
What appears to be happening with Bruce Willis, although we dont know for sure, is that this is something thats accompanying some cognitive decline on his part, Darlene Williamson, president of NAA, tells Daily Kos. She points out that aphasia is a symptom of something else happening to you. Williamson is referring to the common reasons for aphasia like a stroke, or a traumatic brain injury. But a small percentage of people also experience aphasia as a result of cognitive decline...
https://www.dailykos.com/stories/2022/3/31/2089259/-President-of-the-National-Aphasia-Association-says-aphasia-can-be-connected-to-cognitive-decline
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"I Began To Suffer Expressive Aphasia Just After My Wife Died in January" [View all]
appalachiablue
Apr 2022
OP
aphasia is indeed a symptom of something larger..many times caused by a stroke or other
PortTack
Apr 2022
#2
Thank you for sharing this and I wish you the best of luck with staying well.
CentralMass
Apr 2022
#3