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Health

In reply to the discussion: Pyoderma Gangrenosum [View all]

greatauntoftriplets

(177,062 posts)
13. I can't imagine having wounds in those enclosed spaces.
Wed Jun 5, 2024, 09:11 PM
Jun 2024

The skin in both those places is delicate and rubs up against other skin. I hope they're giving her good pain meds.

She should have a choice about debriding. It causes something called pathergy. Essentially that means that it makes the wound worse. https://en.wikipedia.org/wiki/Pathergy

I see both a wound care specialist and a dermatologist. Both have treated pyoderma before, which is good though what works on one person may not work on another. This is an orphan disease, so there's not a lot of money going into research on it.

I hope that she gets out of the LTC facility sooner than that. It's so boring being hospitalized for a long time. I'm ready to climb walls after a week, and she's a lot younger than I am.

You're welcome. I'm happy to share. When I was diagnosed with this in 2015, I had no one to tell me about what it was like. I read what information was available online, and looked at some of the horrendous photos online.

Take care.

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