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Warpy

(113,131 posts)
1. Everybody with an autoimmune disease can relate to this one
Fri Aug 23, 2024, 03:26 PM
Aug 2024

Mine's rare enough it took 13 years and life threatening complications plus a final 3 months going from department to dempartment at Mass. General Hospital to nail it down and you've never lived until you've sat on a stage being gawped at by 50+ docs in a lecture hall as you were being grilled on every aspect of your health history.

Still, getting a diagnosis helped, even if the treatments were so shitty that I avoided them for another 12 years until they got a bit better. Having an official diagnosis meant that when treatments finally came out, I didn't have to wait to get them. So yes, disagnsis is everything. Once it has a name, you know so,ebody is looking for a way to treat it.



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