Cancer Support

Last edited Fri Feb 27, 2015, 12:17 PM - Edit history (1)

after two plus months in NYC we are home for three nights and it feels so good!

My sister and angel, who lives in the UK, planned to stop by for several days and as the doc was stretching out visits it worked our well. We are taking advantage of this moment in time.

Health care costs in the UK and the world cannot even be discussed, the US is so far behind! WTF are we thinking and doing in that respect, being stupid and lacking compassion comes to mind, but that is a whole different topic!

Relapse sucks, having a second allogeneic transplant is not for the faint of heart. Google is not your friend, the word curative is dismissed when discussing a second allo transplant. Hoping to be in that in small percentage that moves forward, hope becomes a favorite word in the cancer arena. All that being said my husband has a strong will and is doing well. They did detect a certain mutation, FTL 3, which makes things more complicated as the cancer is more aggressive.

Choices are an insurance policy with a drug Nexavar, which is FDA approved, that could cause could low counts and liver problems. The other choice is to hope that a second transplant, from the same donor, will wipe out any leukemia cells.

Still on the roller coaster of life and wishing all a safe journey.

But what a long strange trip it has been!