Cancer Support

I had crap for platelets, often to the extent that it wasn't safe to have chemo, which seemed to make it worse. The question was then, was it purely the chemo making my platelet levels go up and down, or had I ultimately damaged my bone marrow? We did a bone marrow biopsy and I was diagnosed with I was diagnosed with - ah, damn, can't recall myelodysplastic syndrome or something - but basically it was reduced ability to make platelets.

So a bone marrow transplant was suggested, and I drove to Boston to Brigham+Womens/Dana Farber for evaluation, but they weren't convinced I could tolerate a bone marrow transplant - I don't know why any more; I want to say it was the platelets but that seems counter-intuitive.

Anyway, although the biopsy said I should, the evaluation said I shouldn't (or couldn't). I have no idea if you can take anything away from this - maybe you've already been evaluated - but if not, temper it by understanding that even if the biopsy says yes, the doctors can still say no. It's not an automatic. I apologize if I'm telling you something you already know (and if you do, maybe someone else reading this will snag a tiny bit more knowledge about this fun cancer thing).

Wishing you the best; p.m. me if you want.