Cancer Support

moonscape

(5,436 posts)

15. I was dx'ed with multiple myeloma in 2015

Sun Nov 17, 2019, 12:57 PM

Nov 2019

MM is, as you know, a cancer of the plasma cells. I had developed a plasmacytoma (tumor) in my tibia that broke out of the bone - that's how it was discovered.

MM manifests so differently in different people. I have no kidney involvement but do have bone involvement. Did a 6-month round of chemo and am on maintenance chemo now with monthly blood work and annual full-body MRIs .

There have been so many therapies coming online for MM that we are living much longer and although not curable, it's manageable.

Two great resources are the MM forum/discussion at Smart Patients and the most excellent myelomabeacon.com

Edit history

Please sign in to view edit histories.

Recommendations

0 members have recommended this reply (displayed in chronological order):

53 replies

= new reply since forum marked as read

Highlight:

Multiple myeloma [View all] captain queeg Aug 2019 OP

Hold on shenmue Aug 2019 #1

Don't be afraid to get a second opinion, or a third Thekaspervote Aug 2019 #2

I know a woman who has lived with it for years. greatauntoftriplets Aug 2019 #3

I got it it sucks EmeraldCoaster Aug 2019 #4

Not great, but survivable kurtcagle Aug 2019 #5

Mine is very early stage captain queeg Aug 2019 #6

My mother-in-law had it radical noodle Aug 2019 #7

I thought I'd replied to this earlier but don't see it. captain queeg Aug 2019 #8

It's good they caught it so early radical noodle Aug 2019 #9

It took a long time to diagnose. femmocrat Nov 2019 #10

Keep me posted captain queeg Nov 2019 #11

Yes, let's keep in touch. femmocrat Nov 2019 #12

Are you in much pain? captain queeg Nov 2019 #13

No. Glad you aren't either. Maybe that leads to diagnosis delays? femmocrat Nov 2019 #14

I was dx'ed with multiple myeloma in 2015 moonscape Nov 2019 #15

Thanks for the info captain queeg Nov 2019 #16

If you get to the point of needing treatment, if moonscape Nov 2019 #17

Don't think I had read this reply yet captain queeg Dec 2019 #18

Haven't seen any recent posts here; just got another 3 month check captain queeg Jan 2020 #19

Just saw this by accident DFW Feb 2020 #20

What do you mean by fiddling with chemicals? Taking drugs? Or some hobby chemist? captain queeg Feb 2020 #21

Hobby chemist, no drugs at all DFW Feb 2020 #22

Did he wear gloves, respirator, etc? captain queeg Feb 2020 #23

No idea, good point DFW Feb 2020 #24

Most people didn't think about that stuff back then captain queeg Feb 2020 #25

I got my blood test results, kappa/gamma ratio (or what're it is) stayed stable. captain queeg Feb 2020 #26

Thought I'd post an update. My regular 3 month check got cancelled for now captain queeg May 2020 #27

Great news! moonscape May 2020 #28

I hadn't heard of that medication captain queeg May 2020 #29

This message was self-deleted by its author CatLady78 Aug 2020 #30

I meant for my reply to go directly to you, check it out below. captain queeg Aug 2020 #32

As to metformin - Ms. Toad Dec 2020 #38

This message was self-deleted by its author CatLady78 Dec 2020 #39

When I did the research, pretty much every version of metformin ER was implicated Ms. Toad Dec 2020 #40

This message was self-deleted by its author CatLady78 Dec 2020 #41

One thing to be cautious of in diabetes literature (the bulk of the metformin literature) Ms. Toad Dec 2020 #43

This message was self-deleted by its author CatLady78 Dec 2020 #44

There was a really good video that helped me understand the risks of statins Ms. Toad Dec 2020 #45

I hope you get good test results. Mine is called smoldering MM captain queeg Aug 2020 #31

This message was self-deleted by its author CatLady78 Aug 2020 #33

You are welcome captain queeg Aug 2020 #34

This message was self-deleted by its author CatLady78 Aug 2020 #35

This message was self-deleted by its author CatLady78 Dec 2020 #36

Thanks for the info. Sounds like you got the best Xmas present possible. captain queeg Dec 2020 #37

This message was self-deleted by its author CatLady78 Dec 2020 #42

This message was self-deleted by its author jfz9580m Nov 2021 #46

Hi. First I wanted to comment on your having had several accounts over the years captain queeg Nov 2021 #48

Thanks for the update! jfz9580m Nov 2021 #49

It's late and just saw this. I appreciate your comments and want to address them more fully so I'll captain queeg Nov 2021 #47

Thanks for your assistance Captain Queeg jfz9580m Dec 2021 #50

I'm so sorry to hear that. As you say at least she didn't suffer too much. captain queeg Dec 2021 #51

Thanks. jfz9580m Dec 2021 #52

That's good advice I will take captain queeg Dec 2021 #53