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Cancer Support

In reply to the discussion: Glioblastoma brain tumor [View all]

ChazII

(6,329 posts)
10. Barrow is a wonderful place
Tue Feb 11, 2020, 04:55 PM
Feb 2020

and my son started two new medications this month. He began Mekinist which is to shrink tumor and as had great success in people who have neurofibromatosis type 1 or NF1. My son and I both have NF1. He also has a plexiform tumor on his left cheek. My son looks like the Disney version of Quasimodo and possesses the same lovable personality. No bitterness on what cards life has dealt him.

Knowing that the folks like you here at DU are sending us prayers, white light, healing, hugs all of those help us get through each day.

Recommendations

0 members have recommended this reply (displayed in chronological order):

Glioblastoma brain tumor [View all] ChazII Feb 2020 OP
My prayers are with you and your son. wendyb-NC Feb 2020 #1
((Chaz)) blm Feb 2020 #2
(((Hugs))) MelissaB Feb 2020 #3
Hugs and prayers! lark Feb 2020 #4
I am so sorry. murielm99 Feb 2020 #5
He has no pain ChazII Feb 2020 #6
I'm so, so sorry! wackadoo wabbit Feb 2020 #7
We did try keto ChazII Feb 2020 #8
Yes, keto can be *very* hard to tolerate wackadoo wabbit Feb 2020 #9
Barrow is a wonderful place ChazII Feb 2020 #10
Tumor has shrunk! ChazII Feb 2020 #11
Latest Discussions»Support Forums»Cancer Support»Glioblastoma brain tumor»Reply #10