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pnwmom

(109,622 posts)
18. My greatest regret is that I didn't fight for MOHS and a new doctor
Wed Feb 21, 2024, 04:43 AM
Feb 2024

after my husband's dermatologist laughed at my request. He'd had years of having an eyelid cancer lopped off, only to return. They kept telling him it was benign. I finally went with him to the dermatologist. He said it acted like a cancer, but it wasn't a cancer. I said if it acted like a cancer, we should treat it like a cancer. I wanted a MOHS. The doctor laughed and said I should stop consulting Dr. Google.

Three months later the lesion returned, and the doctor removed it in his office again. Three months after that, I went with my husband and demanded the MOHS again. He said he could refer my husband but the insurer would probably deny it. I asked what it would cost if we had to pay for it. He said $5K. I said we'd pay for it if we had to, but we wanted the MOHS.

So this thing had been returning for 6 years, and they kept denying a referral for a MOHS over $5,000.

They finally did the MOHS, and said they'd gotten it all, but it was too late. In the years while they saved the insurer some money, the thing that only "acted" like a cancer had traveled into a lymph node, and then into his blood, and then into his spinal column.

The hospital has made a hell of a lot more than $5000 from my husband since then. Maybe that was the plan.

Please, please, if there's any doubt at all, get that MOHS. Also, ask for and read all the pathology reports. A full year before the first time I asked for the MOHS, the pathologist had recommended a full excision (the MOHS is one way to do one). The dermatologist never told us that. Instead, he waited a year and a half before finally giving my husband the referral, and that was only after the second time I demanded one.

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edit: other people below have more experience Tetrachloride Jan 2023 #1
I understand and agree. dameatball Jan 2023 #7
Point out that MOHS has the highest cure rate. sinkingfeeling Jan 2023 #2
That's what I thought as well. Figures I saw said around 98%-ish as opposed to around 93%. dameatball Jan 2023 #3
I have had MOHS for basal cell if..fish..had..wings Jan 2023 #4
Yes, location is a factor. I have had MOHS done on the tip of my nose and the traditional on the dameatball Jan 2023 #6
My oncologist told me yesterday that it's almost time for another bone marrow biopsy. The last Karadeniz Jan 2023 #5
Have had MOHS in the office for basal cell. TNNurse Jan 2023 #8
Yes, I have also had MOHS and traditional. I think MOHS makes for a long day, but if it is more dameatball Jan 2023 #9
I think I was only in the office for 2 or 3 hours, TNNurse Jan 2023 #10
Ha! Not something I would want to watch, but considering the RN part I guess I can understand that. dameatball Jan 2023 #12
I would have watched if it were him. TNNurse Jan 2023 #13
I have a basal there shanti Jan 2023 #14
It really was not bad at all, TNNurse Jan 2023 #15
I had MOHS done on my chin and my forehead. blueinredohio Jan 2023 #11
I Had RobinA Jan 2023 #16
I agree about it taking longer. I had it a few years ago. It just seems odd that my provider refused dameatball Jan 2023 #17
My greatest regret is that I didn't fight for MOHS and a new doctor pnwmom Feb 2024 #18
So sorry this happened to your husband peggysue2 Feb 2024 #19
Thank you, peggysue2! pnwmom Feb 2024 #20
Latest Discussions»Support Forums»Cancer Support»I was scheduled for MOHS ...»Reply #18