Chronic Health Conditions Discussion and Support

Boudica the Lyoness

(2,899 posts)

4. Yep.

Sun Dec 11, 2011, 06:29 PM

Dec 2011

I have a disease called sarcoidosis. One of the worse symptoms of my version of sarc is the severe chronic fatigue, joint, muscle pain and inflammation. My doctor called my muscle pain 'Fibromyalgia'.

I find that keeping as active as I can, avoiding wheat, processed foods and preservatives, helps. There is no cure and the treatments can do more harm than good.

I've been lucky, so far, because my docs give me good pain meds and adderall for the fatigue. I try my best to take as little meds as possible but it's great to be able to feel normal every now and again.

How are you coping?

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18 replies

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CFIDS/CFS/ME Anybody else? [View all] emcguffie Dec 2011 OP

by fm do you mean fibromyalgia? lins the liberal Dec 2011 #1

Yes. emcguffie Dec 2011 #2

That is interesting lins the liberal Dec 2011 #18

sudden onset CFIDS 1998 T Mexelbry Dec 2011 #3

Yep. Boudica the Lyoness Dec 2011 #4

I've been sick a long time, and not doing so well. emcguffie Dec 2011 #5

Thanks for the info about the ciguatera epitope. Boudica the Lyoness Dec 2011 #6

thanks, emcguffie. T Mexelbry Dec 2011 #7

No kidding! emcguffie Dec 2011 #8

I actually tried an alternative cure for sarcoidosis. emcguffie Dec 2011 #9

fibro kicked off by west nile virus mopinko Dec 2011 #10

YOu have to be really careful about the exercise. emcguffie Dec 2011 #14

Family health history is important to consider when dx/wFM condoleeza Dec 2011 #11

For me, it hasn't helped. It has helped, but not the CFIDS. emcguffie Dec 2011 #15

FM associated with a whole alphabet soup Warpy Dec 2011 #12

There are pain docs who will give you pain meds. emcguffie Dec 2011 #17

CFS and Fibro. here! We are Devo Dec 2011 #13

I might get in trouble for this. emcguffie Dec 2011 #16