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emcguffie

(1,924 posts)
5. I've been sick a long time, and not doing so well.
Mon Dec 12, 2011, 09:15 AM
Dec 2011

But now I'm mostly worried about my daughter, who is a senior in high school.

I'm on disability, and we don't have enough money to get by. I think I want to work, but whenever I get up and do anything, like go to the supermarket or go shopping, or cook a big meal, I end up in bed for about three days.

I'm transcribing a recent conference on CFS/ME/CFIDS, and there is some interesting info in it. I haven't been keeping up with the research lately. But there is a school of thought, which may turn out to be the right one, that this disease is caused by exposure to a toxin, called the ciguatera epitope (because it is very close to the ciguatera toxin found in some ocean critters) and low level, background radiation, the kind probably left behind after all the testing that was done. This kind of makes sense to me because it could explain why the US government is so devoted to covering this disease up.

They've really been terrible about it.

I'll post what I find out that's interesting.

CFIDS/CFS/ME Anybody else? [View all] emcguffie Dec 2011 OP
by fm do you mean fibromyalgia? lins the liberal Dec 2011 #1
Yes. emcguffie Dec 2011 #2
That is interesting lins the liberal Dec 2011 #18
sudden onset CFIDS 1998 T Mexelbry Dec 2011 #3
Yep. Boudica the Lyoness Dec 2011 #4
I've been sick a long time, and not doing so well. emcguffie Dec 2011 #5
Thanks for the info about the ciguatera epitope. Boudica the Lyoness Dec 2011 #6
thanks, emcguffie. T Mexelbry Dec 2011 #7
No kidding! emcguffie Dec 2011 #8
I actually tried an alternative cure for sarcoidosis. emcguffie Dec 2011 #9
fibro kicked off by west nile virus mopinko Dec 2011 #10
YOu have to be really careful about the exercise. emcguffie Dec 2011 #14
Family health history is important to consider when dx/wFM condoleeza Dec 2011 #11
For me, it hasn't helped. It has helped, but not the CFIDS. emcguffie Dec 2011 #15
FM associated with a whole alphabet soup Warpy Dec 2011 #12
There are pain docs who will give you pain meds. emcguffie Dec 2011 #17
CFS and Fibro. here! We are Devo Dec 2011 #13
I might get in trouble for this. emcguffie Dec 2011 #16
Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»CFIDS/CFS/ME Anybody else...»Reply #5