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emcguffie

(1,924 posts)
8. No kidding!
Mon Dec 12, 2011, 11:12 PM
Dec 2011

I should have developed a support system years ago, but I didn't.

Geez, it is terrible, and how could anybody possibly understand that going to the grocery store puts you in bed for 3 days? That's crazy! But that's what it does.

There is so much back story to this thing, it is quite disgusting. I did lots of research on it years ago, just enough to figure out the government is doing everything it can to stop us from figuring it out.

The US has gone to a lot of trouble to convince the UK and Australia and NZ to change the name of ME to CFS, and to treat CFS as a psychological illness. Like, hey, we're all crazy.

But there's just too much research that says that's not the case.

However, I was under the impression that they did indeed implement the name change in UK. And they shut down some really promising research. They shut down real research, and then fund research into its being caused by us being depressed or something.

Dr. Natelson in NY is collecting lots of evidence that it sure as hell isn't depression. That's a bit of good news.

More to come.

(I've been away and with computer problems. Need to sleep now,, I think.)

CFIDS/CFS/ME Anybody else? [View all] emcguffie Dec 2011 OP
by fm do you mean fibromyalgia? lins the liberal Dec 2011 #1
Yes. emcguffie Dec 2011 #2
That is interesting lins the liberal Dec 2011 #18
sudden onset CFIDS 1998 T Mexelbry Dec 2011 #3
Yep. Boudica the Lyoness Dec 2011 #4
I've been sick a long time, and not doing so well. emcguffie Dec 2011 #5
Thanks for the info about the ciguatera epitope. Boudica the Lyoness Dec 2011 #6
thanks, emcguffie. T Mexelbry Dec 2011 #7
No kidding! emcguffie Dec 2011 #8
I actually tried an alternative cure for sarcoidosis. emcguffie Dec 2011 #9
fibro kicked off by west nile virus mopinko Dec 2011 #10
YOu have to be really careful about the exercise. emcguffie Dec 2011 #14
Family health history is important to consider when dx/wFM condoleeza Dec 2011 #11
For me, it hasn't helped. It has helped, but not the CFIDS. emcguffie Dec 2011 #15
FM associated with a whole alphabet soup Warpy Dec 2011 #12
There are pain docs who will give you pain meds. emcguffie Dec 2011 #17
CFS and Fibro. here! We are Devo Dec 2011 #13
I might get in trouble for this. emcguffie Dec 2011 #16
Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»CFIDS/CFS/ME Anybody else...»Reply #8