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condoleeza

(814 posts)
11. Family health history is important to consider when dx/wFM
Tue Dec 13, 2011, 01:48 PM
Dec 2011

After a lifetime of odd illnesses that didn't seem to have a pattern, and being dx/w FM, RH - you name it, 2 years ago I was finally genetically tested and also had a stool test to see what my body was reacting to. Turned out for me that I am gluten sensitive. Since my test, my daughters and grandchildren have also been tested. We all share one same gene identified as gluten sensitive and all have a different second gluten sensitive gene.

In looking back at family history this should have been obvious to any doctor who took the time to read our history - they don't take the time to do it. From my experience we all have to be our own doctors. So far the only toxins I appear to react to are gluten and tapioca. After being gluten free for about 6 months almost all my health issues disappeared just prior to my turning 60. I still have joint damage caused by years of a hyperactive autoimmune response, but am free of almost all other symptoms that go back to early childhood. Eliminating gluten was the only "drug" I needed.

It is nothing short of miraculous, frankly. My littlest grandson was dx/w Crohns at 14 months - 8 months ago, I am so grateful that at least he knows now and won't have a lifetime of illness.

Nearly all research done on this has been done in Northern European countries which have national health coverage. When the drug companies fund research and there is $ to be made from chronic illness, there is little incentive to find a cure.

CFIDS/CFS/ME Anybody else? [View all] emcguffie Dec 2011 OP
by fm do you mean fibromyalgia? lins the liberal Dec 2011 #1
Yes. emcguffie Dec 2011 #2
That is interesting lins the liberal Dec 2011 #18
sudden onset CFIDS 1998 T Mexelbry Dec 2011 #3
Yep. Boudica the Lyoness Dec 2011 #4
I've been sick a long time, and not doing so well. emcguffie Dec 2011 #5
Thanks for the info about the ciguatera epitope. Boudica the Lyoness Dec 2011 #6
thanks, emcguffie. T Mexelbry Dec 2011 #7
No kidding! emcguffie Dec 2011 #8
I actually tried an alternative cure for sarcoidosis. emcguffie Dec 2011 #9
fibro kicked off by west nile virus mopinko Dec 2011 #10
YOu have to be really careful about the exercise. emcguffie Dec 2011 #14
Family health history is important to consider when dx/wFM condoleeza Dec 2011 #11
For me, it hasn't helped. It has helped, but not the CFIDS. emcguffie Dec 2011 #15
FM associated with a whole alphabet soup Warpy Dec 2011 #12
There are pain docs who will give you pain meds. emcguffie Dec 2011 #17
CFS and Fibro. here! We are Devo Dec 2011 #13
I might get in trouble for this. emcguffie Dec 2011 #16
Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»CFIDS/CFS/ME Anybody else...»Reply #11