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NightWatcher

(39,358 posts)
1. I avoided the long drawn out test/wait/result/test game
Fri May 18, 2012, 11:37 AM
May 2012

I showed up in an ambulance at the ER back in the end of March presenting all kinds of crazy symptoms. 50 lbs weight loss in one month, inability to move upper legs and upper arms, fatigue, protein in urine, swollen feet....

I was in there for a week while the hospitologist ran 50+ tests (a la an episode of House). Everyone suspected an autoimmune disease, but we/they found even more. SLE (lupus), Lupus Nephritis (lupus in the kidneys and in my liver), Raynauds, and my fav... Dermatomyositis, a neuromuscular autoimmune degenerative that attacks the upper legs and upper arms as well as making swallowing difficult.

Enough about me, what I meant to say was that I was lucky because everything got done at once without the waiting games that everyone else had to deal with. I hope your tests come out well and give you the info that you need to treat yourself. If you wanna commiserate, I'll be around, bored to death because now I can't even work.

Good luck, take care.

Autoimmune bingo? [View all] hedgehog May 2012 OP
I avoided the long drawn out test/wait/result/test game NightWatcher May 2012 #1
So sorry to hear of your diagnoses. unapatriciated Jun 2012 #10
Lupus brzysunset Jun 2012 #11
I Know The Feeling, Double H ProfessorGAC May 2012 #2
Thanks for the support, it really does help! hedgehog May 2012 #3
And the winner is: Sjorgen's! hedgehog Jun 2012 #4
is it an ssa/b thing? mopinko Jun 2012 #6
I have to admit, I'm not comfortable enough with the specialist hedgehog Jun 2012 #7
when to push myself and when to take it easy! mopinko Jun 2012 #8
Going Through It Too ProfessorGAC Jun 2012 #5
Well, that was interesting - hedgehog Jun 2012 #9
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