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BigDemVoter

(4,553 posts)
2. Sounds familiar
Sun Jun 3, 2012, 10:01 AM
Jun 2012

I, too, was diagnosed in November 2010 because of PCP with a CD4 count of 48. As of today, my CD4 count is 350, but I have, unfortunately, been diagnosed with very, very rare HIV-related multicentric Castleman's Disease which has been the single biggest problem I've had to date. I DID have run-of-the-mill bacterial pneumonia in May of this year, but I was so happy to discover it was NOT PCP (how strange to be happy about something like this!).

I'm now in the middle of a job change & am squeaking by on COBRA benefits until my new insurance kicks in. My friends from overseas who have single payer, government-sponsored health insurance, are all horrified at our pitiful system.

It's so strange, because I feel fine right now--not tired, don't feel sick & am ready to get back to work. I'm keeping my fingers crossed that it continues--I wish YOU the best as well!

Recommendations

0 members have recommended this reply (displayed in chronological order):

Thats great to hear! William769 Dec 2011 #1
Sounds familiar BigDemVoter Jun 2012 #2
I had never even heard of Castleman's disease before. LeftofObama Jun 2012 #4
.. La Lioness Priyanka Jun 2012 #3
Thank you! LeftofObama Jun 2012 #5
I'm curious..... Hassin Bin Sober Jun 2012 #6
That was my first diagnosis. LeftofObama Jun 2012 #7
Wow. How long do you think you were positive before diagnosis? Hassin Bin Sober Jun 2012 #8
I'm not sure how long I was positive before the diagnosis. LeftofObama Jun 2012 #9
By the way. Thanks for sharing with me. My fear was/is I might be too nosy. Hassin Bin Sober Jun 2012 #10
Latest Discussions»Support Forums»HIV/AIDS Support»I'm finally getting back ...»Reply #2